NHS Continuing Health Care Nightmare Continues

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I've been struggling to sort out my Mum's NHS Continuing Health Care funding issue since 2012. I've been going round in circles trying to contact various organization; legal firms as well as charities for help in dealing with thing, nothing. I can't find anyone able, willing or interested in helping.

I was in touch with Compass CHC late 2016 up the last DST July 2018. They did their investigations into my Mum's care situation, which they concluded she should be qualifying for CHC. But then when it came the DST meeting; failed to support us adequately. They were only interested in getting paid monies up front and not provide the necessary support I was assured no matter how many times I tried putting in a Complaint.

All this has a knock on effect on my Mum's frail health. As now she is under investigation for potential Bladder Cancer. As the Care Agency commissioned by the Local Authority aren't medically trained to spot how my Mum's health is deteriorating.

I am disgusted as to how the CCG + Local Authority who have a duty of care for my Mum, are only interested in fleecing her of her savings, and have no respect, consideration, or 'care' (that they claim) towards a vulnerable adult in their care. They've also insisted my Mum doesn't want me involved in her care, so they get away with how they treat her.

Exhausted. If it weren't for my Mum, life ain't worth it.
Without attempting to pour oil on troubled waters , a link to the Parliamentary & Health Care Ombudsman ...
where situations like this one should be reported :

https://www.ombudsman.org.uk/making-com ... re-funding
How we can help with complaints about continuing healthcare funding.

This page explains what you can do if you’re not happy with a decision the NHS has made about continuing healthcare funding, including when and how we can help.


May not rectify what has gone on before but ... at least it will be record.
Chris From The Gulag wrote:
Sun Apr 07, 2019 10:24 am
Without attempting to pour oil on troubled waters , a link to the Parliamentary & Health Care Ombudsman ...
where situations like this one should be reported :

https://www.ombudsman.org.uk/making-com ... re-funding
How we can help with complaints about continuing healthcare funding.

This page explains what you can do if you’re not happy with a decision the NHS has made about continuing healthcare funding, including when and how we can help.


May not rectify what has gone on before but ... at least it will be record.

I phoned NHS England some time ago about the situation. They said I'd have to go through the local complaints route, only then would they get involved.
I'm so sorry you have this continued fight. It is exhausting!
CHC were saying my husbands needs are managed, ( the buzz word now).
I fought, with the help of social worker, but they had to admit that because hubby is hospitalised so often that his needs are severe and high. Don't know what to recommend. Im sure you have asked why they don't feel your mothers needs are severe in some of her illnesses. I'm disappointed that compass didn't help in the end. I had considered going to them. Your MP the stage of your appeal?
Wish I could be more help,but I am listening and so feel for you. ((( hugs)))
The procedures to " Right " failings in all branches of health and social care are tedious and lengthy ... by design , perhaps ,
to ward off many so as to present a false picture.

A few carry on regardless ... to be commended ... even then , those who are demned " Correct " see little in the way of
retribution ... for example , monies expended back dated.

Little comfort to anyone but ... that is the System for you.
Pet66 wrote:
Sun Apr 07, 2019 10:37 am
I'm so sorry you have this continued fight. It is exhausting!
CHC were saying my husbands needs are managed, ( the buzz word now).
I fought, with the help of social worker, but they had to admit that because hubby is hospitalised so often that his needs are severe and high. Don't know what to recommend. Im sure you have asked why they don't feel your mothers needs are severe in some of her illnesses. I'm disappointed that compass didn't help in the end. I had considered going to them. Your MP the stage of your appeal?
Wish I could be more help,but I am listening and so feel for you. ((( hugs)))
I did contact my Mum's MP, where they requested a review. Which would mean another set of Checklist + Assessment, when the one carried out last July 2018 they deemed as 'stable'. How can someone's situation be stable, when they're on a long list of meds and having a large care package?

Beggars belief the lengths they go to in avoiding proper care. I was hoping to get a proper Care Agency that would work with me in looking after my Mum's care, as she deserves.(As the one in place, is commissioned by the Local Authority, who do a substandard job, which I have no say about.....long story) But no, I am prevented in looking after my own Mother.
As the MP requested another review, and that was last July, I would go ahead with it now. Clearly your mothers needs have increased. I know its very exhausting, sadly though, one of two ways. Fight on, with as much evidence that you can get, from Doctors, etc, or accept the findings, which you feel with all your heart are incorrect. You are looking after your mother, the very fact you are around,fighting her corner proves that!
Pet66 wrote:
Sun Apr 07, 2019 11:08 am
As the MP requested another review, and that was last July, I would go ahead with it now. Clearly your mothers needs have increased. I know its very exhausting, sadly though, one of two ways. Fight on, with as much evidence that you can get, from Doctors, etc, or accept the findings, which you feel with all your heart are incorrect. You are looking after your mother, the very fact you are around,fighting her corner proves that!
I know and my Mum knows I am involved in my Mum's care. But unfortunately the Care Agency take predominance in my Mum's care, and have down played her needs to fall into line with the CCG.
Further info can be found on this link
https://caretobedifferent.co.uk/wits-en ... ealthcare/

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rosemary wrote:
Mon Apr 08, 2019 11:33 am
Further info can be found on this link
https://caretobedifferent.co.uk/wits-en ... ealthcare/

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I have tried lots of avenues on the list, but have drawn a blank on all of them. My Mum is illegally having to pay for care when she shouldn't have to. The injustice is making me more ill, can't wait to die is my reality.