Skip to Content Skip to Navigation
Member Login

Member login

No account? JOIN US

State of Caring Survey 2021

The State of Caring Survey is the UK’s most comprehensive research into the lives and experience of carers. The 2021 survey has now closed.

Our research and responses to our surveys over the last year have helped us to highlight carers’ experiences across the UK to the media. With your help, we have campaigned successfully for better guidance, testing for carers, PPE for unpaid carers, carers' 'support bubbles' and exemptions to allow carers to get a break. Carers were also included in the priority list for the COVID-19 vaccination, and we campaigned for specific advice to support juggling work and care. Carers telling us what their priorities are has also helped to focus our work and help decision makers know what matters to carers. We will continue to campaign for carers to get better support. 

We appreciate each and every person who has taken the time to complete the survey and together you help us paint a picture of what caring has been like in the last year. 

What we are doing with your evidence

  • Campaigning for increased rights and entitlements for carers by sharing select findings with MPs, Government and local decision makers.

  • Understanding your experiences to argue for better rights such as a right to Carer’s Leave in the workplace.

  • Providing evidence to help improve carers’ experience of services and support to make life easier.

  • Making a strong case for increasing financial support, such as Carer’s Allowance.

  • Providing evidence of the impact of the pandemic on unpaid carers, to argue for better support to manage through and recover from the pandemic. 

State of Caring 2021 - key findings:

In 2021, 8,500 current and former carers shared their experiences and helped inform our State of Caring 2021 report. Read more in the full report here

  • One in five unpaid carers are worried they may not cope financially over the next 12 months
  • One in four carers (23%) may not have enough money to cover their monthly expenses
  • Carers spend an estimated £1,370 a year on average on services or equipment for the person they care for
  • Over half of carers (52%) feel anxious or stressed about their finances

Get in touch:

If you have any questions about the research, please contact our policy team by emailing This email address is being protected from spambots. You need JavaScript enabled to view it.

Back to top