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State of Caring Survey 2019

The State of Caring Survey is the UK’s most comprehensive research into the lives and experience of carers. This year over 7,500 current carers shared their experiences and helped inform our State of Caring 2019 report. Key findings include:

  • almost 2 in 5 (39%) carers saying that they are struggling to make ends meet
  • over half of carers who are receiving Carer’s Allowance (53%) are struggling to make ends meet
  • shockingly, over two thirds of carers (68%) regularly use their own income or savings to pay for care or support services, equipment or products for the person they care for
  • 1 in 8 carers (12%) reported that they or those they support received less care or support services during the previous year due to a reduction in the amount of support from social services
  • 53% of carers said that they are not able to save for their retirement
  • almost two thirds of carers (64%) say that they have focussed on the care needs of the person they care for, and not on their own needs.

Read more in the full report here:

State of Caring 2018 - what you told us:

Caring costs: Over a third of carers (37%) responding to our survey described their financial situation as ‘struggling to make ends meet’, while a further 20% said they are in or have been in debt as a result of caring. The impact of caring is greater the longer someone has been caring - just two in five (44%) of those caring for more than 15 years could afford their bills without struggling financially, compared with three in five (62%) of carers in their first year.

Cuts to support: Only one in ten (10%) of carers responding felt confident that the support they receive and rely upon will continue.

Carers need more support with their own health: 72% of carers responding said they had suffered mental ill health as a result of caring and 61% reported physical ill health as a result of caring. During Carers Week our messages about the importance of supporting carers with the health and wellbeing had a reach of 100 million.

What we did with your evidence:

  • Your responses enabled us to provide comprehensive evidence to the committee of MPs who scrutinise the work of the Department for Work and Pensions. The Committee made a series of important recommendations; calling on the Government to put in place paid care leave for employees juggling work and care and to make a number of changes to Carer’s Allowance to make it easier to earn money alongside receiving it.
  • Your evidence of the health impacts of caring helped us push for the most robust commitments to date to improve the way that the NHS identifies and offers support to carers in the NHS Long Term Plan.
  • Your experience of the care and support system was at the heart of calls from influential organisations such as the Local Government Association for more funding for social care.
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