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NHS Continuing Healthcare

What is NHS continuing healthcare?

In England, Wales and Northern Ireland, if a person has a disability or long-term complex medical problem, they might qualify for a package of social care arranged and funded solely by the NHS called NHS continuing healthcare (CHC). Not many people yet know about it. 

In Scotland there are different care arrangements called Hospital Based Complex Clinical Care.

Who is eligible for NHS continuing healthcare?

NHS continuing healthcare is for adults. To be eligible the care needs for the person you are caring will need to be assessed by looking at the following.

  • what help they need
  • how complex their needs are
  • how unpredictable their needs are, including any risks to their health if the right care isn't provided at the right time.

If the health of the person you are caring for is rapidly getting worse, ask about a fast track assessment to bypass the initial screening.

How do I apply for NHS continuing healthcare?

To apply for NHS continuing healthcare, ask your GP or social worker to arrange an NHS continuing healthcare assessment.

What happens during the assessment?

The person you are caring for will be assessed on general health and care needs with a checklist that will cover:

  • Mobility
  • Breathing
  • Continence
  • Communication
  • Nutrition (food and drink)
  • Skin (including wounds and ulcers)
  • Psychological and emotional needs
  • Altered states of consciousness
  • Symptom control through drug therapies and medication
  • Cognition (everyday understanding of what’s going on around you)
  • Other significant care needs

If the initial screening shows that the person you are caring for might be able to get NHS continuing healthcare, they will need to have another assessment.  It will be carried out by a team of two or more health- and social-care professionals who are involved in their care. They will use the same checklist above but will go into a lot more detail.

Where can I get further help with NHS continuing healthcare assessments?

The process involved in NHS continuing healthcare assessments can be complex. An organisation called Beacon gives free independent advice.

Visit the Beacon website or call the free helpline on 0345 548 0300.

Complaints and Challenging Decisions

This section contains information on making complaints and challenging decisions.

Making a Complaint

The NHS, local authorities and health and social care partnerships in Scotland follow a two-stage complaints procedure. You can find details of the organisation's complaints procedure on their website, or by contacting them directly. 

Stage 1: Frontline resolution

if you are unhappy with the services you have received, you may be able to solve this informally. You can make your complaint in person, by phone or email to the manager of the service you are complaining about. The main focus should be on resolving the complaint to your satisfaction. You should receive a response about your complaint within 5 working days. If you are happy with the outcome, your complaint is now complete.

However, if you are not happy, or your complaint is too complicated to be dealt with informally, it can move to the next stage.

Stage 2 – Investigation

If you are still unhappy you can ask the organisation to take your complaint to Stage 2. You should receive a response within 3 working days to let you know that the complaint has been recorded. Staff will then investigate the situation and have to get back to you within 20 working days. If the situation is very complicated you might be asked to accept that it will take longer than 20 days for the organisation to decide what to do. If you are happy with the decision reached the complaint is closed.

Stage 3 - Scottish Public Services Ombudsman

If you are not happy you can take your complaint on to the Scottish Public Services Ombudsman (SPSO). They have a range of information about how to make a complaint.  This can be found by visiting their website at: https://www.spso.org.uk/complaining-spso

 

Challenging Decisions

Our fellow national carer organisation, MECOPP, have produced "Challenging Social Care Decisions in Scotland: A legal guide" authored by by Tim Haddow, Advocate

This is part of the work of their 3 R’s Project, MECOPP’s Self-Directed Support Legal Rights Project. One of the aims of the 3 R’s Project is to build the capacity of third sector organisations which provide support to individuals who are entitled to self-directed support under the Social Care (Self-directed Support) (Scotland) Act 2013. This guide is part of that work.

You can download a copy of the guide by clicking the "download PDF" icon on the right or by clicking here.

You can also contact the 3 R's Project directly for advice. The 3 R’s Project will assist any individual with social care support needs and carers to realise new rights and entitlements to self directed support.  You can find out more about self directed support at the "My Support, My Life" website

It will also helps third sector organisations which provide support to individuals who are entitled to self-directed support. 

The 3 R's project can provide you with:

  • advice and on your legal rights under self-directed support, human rights and equalities legislation
  • undertake casework on your behalf to support resolution of more complex issues
  • refer you to legal organisations if resolution cannot be reached

To find out more:

What resources are included?

The Digital Resource for Carers brings together a wealth of content to ensure carers have access to useful information and advice on key areas.

These include:

Health & Wellbeing

In this section carers will find resources to help support their own physical and emotional health and wellbeing as well as information…

Read more

Support for caring

Caring for someone can be valuable and rewarding, but without the right support caring can have health, financial and social impacts. This section includes a range…

Read more

Technology and caring

This section focuses on how technology can support care and caring. Resources include…

Read more

Financial planning

This section helps carers think about financial planning and gives them tools and information to get started. Resources include…

Read more

Working and caring

This section aims to support carers who are juggling work and care, thinking of leaving or returning to work. Resources include…

Read more


The resources are hosted on a tailored, joint-branded webpage specifically designed for the exclusive use of your service users.

Health & Wellbeing

In this section carers will find resources to help support their own physical and emotional health and wellbeing as well as information about supporting the health and wellbeing of the person they look after.

Resources include:

  • E-Learning: The role of good nutrition when caring for someone: an e-Learning course that aims to help carers understand the role of nutrition both for themselves as well as the person they are looking after.
  • Spotlight on nutrition: Essential reading guides on the role of nutrition and hydration, including a series of guides focusing on specific conditions and offering information on how to provide a balanced diet when caring for someone with cancer, COPD, stroke and dementia.
  • Looking after your health: Resources about how to seek support from your GP, get enough sleep, care for your back, cope with stress and depression, cope with difficult feelings and more.
  • Taking a break: Information and factsheets on taking a break.

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Support for caring

Caring for someone can be valuable and rewarding, but without the right support caring can have health, financial and social impacts. This section includes a range of resources to support carers.

Resources include:

  • E-Learning: About Me: building resilience for carers: a resource that helps carers identify and build networks of support and promotes their self-care.
  • Upfront guide to caring: This is a simple tool for carers who are new to the maze of benefits and entitlements.
  • Looking after someone - information and support for carers: our guide for anyone caring for family or friends. The guide outlines carers’ rights and gives an overview of the practical and financial support available.
  • Being Heard: a guide to self-advocacy for carers: Carers UK’s self-advocacy guide helps carers navigate a confusing system, get their message across and cope with complex thoughts and emotions when they are caring.
  • Factsheets and practical support for carers: Our factsheets break down the complex issues simply and accurately so that carers can get the full picture of the support available and how to get it.
  • Atlas of caregiving: An Atlas CareMap helps you understand a person’s care ecosystem, showing who cares for whom, and how.
  • E-Learning: Young Adult Carers: This course offers information and advice for young carers aged 18-24 years.

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Technology and caring

This section focuses on how technology can support care and caring.

Resources include:

  • Jointly: Developed by Carers UK, Jointly is an innovative mobile and online app (web, iOS, Android) that is designed by carers for carers. Jointly makes caring easier, less stressful and more organised by making communication and coordination between those who share the care as easy as a text message.
  • Technology and caring resources: Technology can help carers be more efficient, reduce unplanned visits or hospitalisation, take some of the worry out of caring and give you and the person you care for more independence. We have produced a range of resources to help carers understand how technology can them and the person they look after, including our guide Supporting carers with technology offering lots of useful information about how to access and pay for technology as well as what types of technology can be relevant to carers.

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Financial planning

This section helps carers think about financial planning and gives them tools and information to get started.

Resources include

  • Thinking ahead: the cost of care and support: This resource helps carers understand the cost of care and support, the impact of caring on work and the impact of caring on household expenditure and discusses how to manage money and what help might be available.
  • Financial support: Information about entitlements or how to get help with health costs, debt, household finances or pension.

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Working and caring

This section aims to support carers who are juggling work and care, thinking of leaving or returning to work.

Resources include:         

  • Supporting carers at work – a carer’s guide: a guide designed to help carers cope with the pressures of work and care.
  • Requesting flexible working: a step-by-step guide to flexible working and how to make a request.
  • Seeking support: Discusses the range of support both in and out of the workplace, and the different levels of support needed at different times.
  • Thinking of leaving work: Our quick guide explores the options carers have if you thy thinking of leaving work.

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PIP (Wales)

If you are looking after someone who has a disability or illness and is aged 16 to 64, they may be entitled to Personal Independence Payment (PIP). 

This factsheet can be used if you are claiming PIP on behalf of the person you are looking after or for yourself. The information is written from the point of view of the person claiming the benefit.

PIP

PIP ENG

This factsheet contains information on :

  • What is PIP?
  • Who can claim PIP?
  • When can you claim PIP?
  • How much is PIP worth?
  • The assessment
  • How to claim PIP
  • If you have a terminal illness
  • What happens if you already get DLA?
  • The decision
  • Challenging a decision
  • What to do if your circumstances change
  • Other help you may qualify for


PIP 2018/19
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Taliad Annibyniaeth Personol

Os ydych yn gofalu am rywun sydd ag anabledd neu dostrwydd a'u bod yn 16 i 64 oed, efallai y gallent hawlio Taliad Annibyniaeth Personol (TAP).

Gellir defnyddio'r daflen wybodaeth hon os ydych yn hawlio TAP ar ran yr unigolyn rydych yn gofalu amdano neu ar eich cyfer chi eich hun. Ysgrifennir y wybodaeth o safbwynt yr unigolyn sy'n hawlio'r budd-dal.

PIP WAL 2

Mae'r daflen ffeithiau hon yn cynnwys gwybodaeth ar

  • Beth yw TAP?
  • Pwy sy'n gallu hawlio TAP?
  • Pryd gallwch hawlio TAP?
  • Faint o TAP y byddwch yn ei dderbyn?
  • Yr asesiad
  • Sut i hawlio TAP
  • Os oes gennych salwch angheuol
  • Beth sy'n digwydd os ydych yn derbyn LBA yn barod?
  • Y penderfyniad
  • Herio penderfyniad
  • Beth i'w wneud os yw eich amgylchiadau'n newid
  • Help arall y gallech fod yn gymwys ar ei gyfer
  • Preswyliaeth a phresenoldeb

Taliad Annibyniaeth Personol 18/19
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