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Im 22 and im stressed out to the Max - Carers UK Forum

Im 22 and im stressed out to the Max

A place for those 18-35 to chat about all things caring.
So a little bit about what im dealing with at the moment:

-been a carer for my mum since i was 14
- our family all live far from home with thier own families so theres nobody else around

So if been a carer for my mum since i was 14. She was in a big car accident before i was born and it smashed her pelvis up into 4. When i was about 7 or 8 she was tokd that she had spinal disk degeneration and arthiritis in her hip spine and pelvis. It was fine for the first few years but after that she was mostly wheelchair bound.

My mum is normally able to do some tasks on her own i.e able to gwt out of bed and start to have a shower(id help her when she needed the help) but
Fast forward to a few weeks ago, my mum had been in so much pain shes been completely bed bound for the last few weeks. Meaning my job got a lot harder. I have to help her roll over, get in and out of the bed, walk to the toilet, keep the house in order (theres a lot to it but it doesnt sound like it when you write it down). She recently had an MRI scan that showed that she had a pathological fracture in her 3rd lumbar vertebrae which means it was caused by a disease so shes got to go for even more tests.

I'm becoming really stressed out as the house is super messy and i dont get time to clean it. Ive had to leave my job as a carer for a wonderful company as i cannot handle the extra strain as I'm up most of the night helping her too.

There is no way to make our house accessible for her as we live in a private rented house and we wouldnt be able to do the rennovations necessary to make it adequate.

I'm just super stressed at the moment and we cant afford to get anyone in to ease my workload. Im embarrased by the state of the house too. And having an untidy house goes against our rental agreement with the landlord too so im trying my best to get it done asap.

I also suffer from depression and anxiety and its having a big effect on my mental health. I love my mum and I'll do anything to help her but I'm not sure how to manage to keep the house clean and look after her and have a life at the same time.
Have you had any contact with Social Services?

A Needs assessment for your Mum and a Carers assessment for yourself.

If you're already a carer then I'm sure you must know about these, but you may have just slipped into the routine of caring for your Mum which has now grown to the point where you need help.

You definitely need some help as you deserve to be able to live your own life, which at age 22 is only just starting. You need to be enjoying yourself more and probably thinking about a family of your own, This is going to be difficult to achieve without help in the current circumstances.

Remember, no-one has any obligation to care for anyone else no matter what their relationship.
In the long term do you wish to continue caring for your Mum. Or would you like a planned way of relinquishing the care you provide to her. Are you expecting to remain living with Mum in the future. If not I would register with the local council for better accommodation. This could be together to start and when Mum is settled. Start to hand things over.

As already mentioned an updated needs assessment is required, Does Mum have an O/T. O/T's can write recommendations for appropriate accommodation. Given you Mums health I would think you stand a good chance on the housing list. But you need to be clear if you want to move and remain with Mum. Or if Mum's needs are so high it's more like residential care.

https://england.shelter.org.uk/

Shelter are the go to charity for good advice on housing matters.
Hi TicTash welcome to the forum

Sorry to hear your'e going through this, it sounds very demanding and stressful and it's not surprising that you're feeling burned out and overwhelmed. I'm sure a lot of people here understand how you're feeling.

It's important to get all the practical and financial support you're entitled to. Have a look through our advice pages to see what this is:

https://www.carersuk.org/help-and-advice

You can contact the helpline on 0808 808 7777 from Monday to Friday, 9am – 6pm or email advice@carersuk.org with any questions.

You might want to connect with other carers in your area, lots of groups have regular meet-ups etc. Have a look here to see what's in your area:

https://www.carersuk.org/help-and-advic ... al-support

As regular meetings may be suspended at the moment, Carers UK are running weekly online sessions where we come together informally to share experiences and offer support. You can sign up here:

https://www.carersuk.org/help-and-advic ... gIxB_D_BwE

Do join us if you'd like to, members have said how helpful these have been to realise they're not alone and to speak to other carers.

Best wishes

Jane
You are 22 and should be happy and carefree, out with your friends, having fun.
Mum is clearly very seriously disabled now, and it's time to work out what she needs for her future, without you filling in all the gaps.
How old is mum?
Is she privately renting, or housing association?
Do you know if you can stay there if mum goes into a home?
Is she claiming Attendance Allowance?
Has anyone mentioned NHS Continuing Healthcare to you?
That is way too much to be doing at age 22. Clearly not a sustainable situation.

Firstly contact social services for assessments

Also look into Continuing Health care.

Have you thought about looking for alternative accomosation for your mum where there will be help on hand.

By all means ask social services to see if they will help with paid carers to dp some of the caring for now but the wider issue is what to do longterm.
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What do you want to do with your life?
Please answer my questions so we can help you find the best solution.
Hey guys thanks for replying ill try and answer as much of them in order as i can:

1. Have you had any contact with social services?

I have not spoken to social services yet as its only recently my role as carer has gotten a lot harder to manage, I used to only help with little things such as tidying up, cooking and helping to wash her hair if she had a flare up, but because recently shes been bed bound for the last 4 weeks my roles been a lot harder meaning i have to help with everything. We dont have a full diagnosis yet but we do have a ct scan tomorrow which will hopefully tell us what disease has caused the fracture in her spine. Im also trying to get the house tidier before i call social too as I also have my pets which like to make a mess.


2. In the long term do you wish to keep caring for your mum?
I still want to help look after her as after all she is my mum but i dont want to see her as my patient if that makes sense, im happy to do the things I used to do like pish her in her chair to go shopping and cook but ive been doing it since I was young and i want to spend more time with her as her daughter and not her carer

3. Are you expecting to remain with mum in the future? if not I would apply with the local council for better accomodation.

For at least the next 4 or 5 years i will be remaining with my mum, im in a long term relationship and we do eventually have plans to live together but wont be for at least 4 or 5 years so we can have time to save up for our own place. We have already applied with our local council but they do not have any accomodation suitable in the area we would like to be in. We are expecting to get some inheritance after a family member died which means that we will be able to buy a bungalow and get it adapted so for the meantime were sticking where we are as theres no point moving out into a council house in a location that not where we want to be for say 8 months and then move out again when we are able to afford a bungalow. Another reason the council dont have anything is because of my pets I own 2 dogs, 1 cat and 3 rabbits

4. Does mum have an O.T?
Yes she does and she has already written a reccomendation for us. But as I say our council have nothing available for us.

5. Its important to get all the practical and financial help.
I get my carers allowance at £67.25 a week and i get income support at £29.15 a week. This is all i am entitled to.

6. How old is mum?
Shes 60 in 2 weeks time

7. Is she privately renting or housing association?
Private rented, our landlord is really nice to us too.

8. Do you know if you can stay there if mum goes into a home?
I wont be able to as i dont have a job so won't be able to pay the rent.

9. Is she claiming attendance allowance?
No. When she asked she was told she wasnt eligible

10. Has anyone mentioned NHS Continuing Healthcare to you?
They havent I dont know what it is.

11. What do you want to do with your life?
Honestly i dont know anymore. I used to want to be a vet nurse but had my dreams crushed when uni branded me too mentally ill to do the course. My goal in life is just to be happy.


I hope this has answered most of your questions :)
bowlingbun wrote:
Tue Jun 30, 2020 8:16 am
Please answer my questions so we can help you find the best solution.

I did :)