Because of the very valuable information contained in this topic I'm going to move it to "Tips & Practical Advice" where more members are likely to see it
Thanks, Susie, I have read a bit more and confused myself again now!
The information sheet I have got from Mencap about the Court Of Protection mentions Deputies and mentions specifically having to apply to the court in certain situations, such as making a will on someone else's behalf (it also mentions selling a property). It gives this link:
http://www.justice.gov.uk/protecting-th ... d-deputies
That says that the court can appoint a deputy if no-one else is willing or able to take on the role. So I assume from that that mum can do most things but that something legally binding (like a will) would require permission from the court in order to make sure it's done properly, although it looks like that wouldn't be a terribly difficult thing to organise assuming there are no concerns about whether you are acting in the person's best interests or not. So I guess if I leave details of this in my will, if I die before he's 18 then his legal guardian can sort everything out if I state I'm happy for her to become his deputy if such a need arises? Then I guess it's only a problem if there's evidence of wrong doing?(NB it does say the laws aren't the same in Scotland and Northern Ireland).
A friend of mine works for a law firm and her boss has offered to check this over for me as she's off work sick at the minute and very bored! So I've just bought a Will pack from WHSmiths and got a free info pack from Menap (which also contains the trust deed form so I can set that up as well), so between the two sets of info and this court of protection stuff I've just about written up everything I think needs to be written. This nice lady is going to check it over for me and Mencap check the paperwork at their end so hopefully between the two it will all be alright. Mencap did give me a list of solicitors who specialise in wills for people with disabilities but the cheapest quote I got was £750 to £1,000 minimum which is out of my price range.
I'm hoping to get the paperwork sorted and sent off in the next week or so so if I get anything back saying I've done it all wrong I will get it posted up! Have given myself a headache with it all but I'll be glad when it's all done.
NB - Also thought I'd mention that I've arranged to donate my body to science when I die which I quite like the idea of. I'm on the donor list as well so they won't take a body if the organs are removed but if you're intact they can use you and I do like the idea of making some sort of contribution from beyond the grave! If anyone else is interested the info is on here: