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Using oxygen at home. - Carers UK Forum

Using oxygen at home.

Share your ideas about the practical side of caring.
Throat cancer.

My husband had a tracheostomy in May.
He has spent about ten days at home since then.
He has been back in hospital for almost a month, because he keeps getting infections.
We are hoping he will be coming home tomorrow.
He has been told that B.O.C. will be coming to install pipes in his bedroom, and the living room, as he will be on oxygen for life, now.

Has anyone experienced this?
I would like to know how it is going to affect us, regarding me managing his care. And will we be able to get out and about?

Any advice gratefully received.

Oh, he had a peg fitted into his stomach about 18 months ago, as he must have nil by mouth.
Hi there,
Mum had COPD and was on oxygen for several years. Originally, the O2 was delivered regularly but in later months (and I think now more the norm), she had a concentrator. It is a machine about the size of a suitcase that basically produces the oxygen so you don't need to worry about ordering canisters etc. it is plugged into the mains and the tubing can be fixed so it provides sufficient tubing to walk from room to room etc (they will do this for you).

It is also possible to order a small canister that you can take around with you when you Re out shopping etc.

Please remember that you can also reclaim the amount of electricity that the 02 concentrator uses....speak to the supplier about how you go about this.

I hope that your husband is able to come home soon and that everything is sorted out smoothly for you both.

Bell x

PS...the machine does make a little noise but it is something that I think you just get used to...of course you can have the machine in another room if you prefer and just have the long tubing it just means that you have to go into the other room to turn on/off but as your hubby will be using 24/7 this shouldn't be a problem!
Thank you so much for the information, Bell. That has eased my mind a lot.

British Oxygen rang me at 8.30am. They are coming this afternoon.
I don't think it will be the concentrator, as he asked me which rooms my husband will be using.

And fancy being able to claim for the electricity if we do get one of those.

Many thanks again.
oxygen at home please check your house insurance...
George - why?
(we now have two cylinders with nasal cannulars attached in case hubby needs them again).
The British Lung Foundation have a lot of info about the practicalities of home oxygen use. They say this about the insurance -

[quote]Home and car

You should inform your insurance company if]

My son was oxygen dependant via a tracheostomy, we had several large canisters, several small canisters and an oxygen concentrater.
The insurance premiums were not affected by use informing the insurance company that we had oxygen in the house but if you didn't tell them and there was a fire then they may not pay out.

Make sure you inform your electricity supplier. I think it is pretty dependant on who your supplier is but ours had a scheme whereby they would not cut off the electricity supply due to non-payment as there was someone who was medically dependant on the supply. In the event of a power cut they would make you priority to reestablish the supply.

Inform the fire brigade too. Due to the risk of explosion of the oxygen in a fire your home would be flagged up. The lovely hunky firemen came for a look around and fitted extra fire alarms for free. They also suggested I store the oxygen canisters against an outside wall.

It was a bit of a nightmare having a baby whose trachy was connected to oxygen tubing. Our home is spread across 4 floors and the concentrater was stood on the landing in the middle with 15 metres of piping coming from it. The tubing was forever being trod on, tripped over or slammed in doors. So of course every time that happened I had to double check it hadn't dislodged the trachy.
If you store cylinders the fire brigade need to have information posted on the home to make them aware of the danger, if the home is on fire (god forbid) , oxygen is an accelerant and will feed a fire, as we all know you should not smoke or have a naked flame near an oxygen cylinder ,therefore you should inform the insurance company of the use / storage of oxygen cylinders within the home .....
Bell was spot on with the information she gave me.
I have just this minute, completed the form which BOC gave me to claim a rebate on our electricity.
He also told me that the fire brigade would come to the house to do a safety check.
And he also informed me that we must notify the car insurance people, and the house insurance.
If we didn't, and there was a fire - then they could refuse to pay out a claim.

Another thing. Ken must not use any oil or paraffin based creams.

He must keep 1.5 metres away from electrical appliances - TV etc. And 5 metres from naked flames.
To be honest, I had never actually thought about the insurance implications which I should have when I look back to years ago when Mum used to have the cylinders and they were stored in the back alley way! Im just going to go off and forewarn my neighbour here just in case the same applies in Spain! Although I'm not sure the Spanish have cottoned on to the fact that insurance companies are supposed to actually pay out now and again Image

Bell x
I have been talking to a friend today.
She has been informed by a lady who uses oxygen, that anyone carrying the cylinders in their car, must not enter a tunnel until they have informed the toll booth people. Then they have to use the lorry lane, and be escorted through the tunnel.