Hi Everyone
My Brother has been caring for his wife who has friedreich's ataxia he married her knowing he would be her carer as her condition steadily worsened, she is currently Wheelchair bound and has type 2 Diabetes as well as other health issues, the whole house is designed around her my brother sleeps on a mattress on a board with wheels on so it can be rolled under her bed to be out of the way for access to her for lifts etc.
Having been on and off furlough during covid I have been down helping by doing DIY and jobs to keep Her happy repainting bedroom etc sorting the garden building an insulated crafting shed so she can do hobbycrafts and puzzles,which hasn't been used for months now!
My mum goes down to walk the dog that she wanted every day, She refuses to have carers that she doesn't know and she has slowly fallen out with all of them including her mum who is now banned from the house, everyone including my niece has to walk on eggshells as she can "blow up" over the smallest thing. Currently a family friend is doing a few hours to help my brother out but my brother still has no time to himself I have offered to stay with his wife while he goes out for a bit of a break but he refuses.Over the last few months he has lost so much weight and survives on complans we buy him food but he doesn't eat it
my Brother has not had any respite for more than 2 years She has been once but wanted to come home after one day and since has found any excuse not to go. My Niece wrote a heartfelt letter to the doctor asking for help the doctor phoned and my sister in law answered and doctor was told all was well and that was that!
We have been trying to talk to social services but all they did is give more money for respite even though it is paid back unused every year we are still trying to convince my Sister In Law to go to respite and she finally agreed to go once they were reopening after covid we found somewhere locally that will take her but she has know changed her mind yet again she seems blissfully unaware of how low my brother is and how much his health is suffering. I am currently staying away as I'm afraid I will say something that will also get me banned from the house. But I cannot sit idly by for much longer but have no idea how to make life better for all of them does anyone have any idea how to proceed from here?
My Brother has been caring for his wife who has friedreich's ataxia he married her knowing he would be her carer as her condition steadily worsened, she is currently Wheelchair bound and has type 2 Diabetes as well as other health issues, the whole house is designed around her my brother sleeps on a mattress on a board with wheels on so it can be rolled under her bed to be out of the way for access to her for lifts etc.
Having been on and off furlough during covid I have been down helping by doing DIY and jobs to keep Her happy repainting bedroom etc sorting the garden building an insulated crafting shed so she can do hobbycrafts and puzzles,which hasn't been used for months now!
My mum goes down to walk the dog that she wanted every day, She refuses to have carers that she doesn't know and she has slowly fallen out with all of them including her mum who is now banned from the house, everyone including my niece has to walk on eggshells as she can "blow up" over the smallest thing. Currently a family friend is doing a few hours to help my brother out but my brother still has no time to himself I have offered to stay with his wife while he goes out for a bit of a break but he refuses.Over the last few months he has lost so much weight and survives on complans we buy him food but he doesn't eat it
my Brother has not had any respite for more than 2 years She has been once but wanted to come home after one day and since has found any excuse not to go. My Niece wrote a heartfelt letter to the doctor asking for help the doctor phoned and my sister in law answered and doctor was told all was well and that was that!
We have been trying to talk to social services but all they did is give more money for respite even though it is paid back unused every year we are still trying to convince my Sister In Law to go to respite and she finally agreed to go once they were reopening after covid we found somewhere locally that will take her but she has know changed her mind yet again she seems blissfully unaware of how low my brother is and how much his health is suffering. I am currently staying away as I'm afraid I will say something that will also get me banned from the house. But I cannot sit idly by for much longer but have no idea how to make life better for all of them does anyone have any idea how to proceed from here?