Thu Nov 17, 2011 2:50 am
Hi,my name is Christine (Chris) to my freinds,this is the first time I have posted on this site as a carer there never seems to be enough hours in the day as I am sure you will all understand.I have been looking after my husband for the last two years,he has gone from a fit healthy hard working man,to someone with a lot of health issues,due to a brain virus.It has been to say the least the most difficult time in both our lives,and we have encounted a lot of hurdles along the way.The day he became ill started like any other day (normal) and by lunch time we found our selves at the start of a VERY long journey with our lives turned upside down.We have had so many difficult days just trying to get doctors to listen to us and not just fob us off,form day one they (for some reasons only known to themselves)seem to have made their minds up that my husband had some kind of deppression that was causing his problems,and even told him that if he really wanted to he could get his self better,they did not seem intrested in what we tried to tell them,so we got passed from pillar to post,but they were not prepared to offer us any kind of help.After a year we went back once again to see our GP (who has been amazing) as we were getting desprate,he refered us to yet another doctor (who we had to wait a year to see) he was the only one who really seemed intrested in what we were saying,and gave us the diagnosies of a viral infection to my husbands brain,this has caused significant brain damage,we were devastated as this is not what we were expecting to hear,we had always belived he would make a full recovery and we could return to our lives the way they were.The doctor told us that my husband will not recover from this and will have to live with this for the rest of his life.I feel very angry about what has happend as I feel the doctors have alot to awnser for.
I would love to hear from anyone who is in a simlar situation as it really helps to talk.
I would love to hear from anyone who is in a simlar situation as it really helps to talk.