Hello all,
I'm sorry to introduce myself on such a downbeat note, but I'm having a few problems and not sure which way to turn. I hope the following makes sense, as it's a bit complex.
Background is: my wife has been diagnosed with a few serious - and incurable - genetic conditions; I'm not going to bother you all with the details, but suffice to say she's had to give up her work and now receives higher rate DLA (both care and mobility) as well as support group ESA. Until everything fell off a cliff about 2 years ago, she was working and I still am. We are both in our (late!) 30s.
I'm not quite sure what result I expect from posting this, but to be honest I am struggling right now to be able to keep working and support my wife. She is currently under the care of a number of consultants (most in London, due to the rarity of her condition) and also wheelchair-bound. We live on the South Coast, so getting to the appointments is not something she can do without my taking a day off work.
I've no complaints about the NHS, who have been fantastic in looking after her care, but we do have a lot of appointments - I've done a quick count and we actually had 8 in the last 4 weeks, and that's pretty average for the last few months, which has lead to a few few challenges work-wise for me, as 2 days off per week is not easy.
Anyway, I'm not quite sure why I am writing this post - any light at the end of the tunnel seems to just be an oncoming train!- but my wife is doing a brilliant job of coping. I can't admit it to her, but I am not. We've no-one local who can help me out (both our parents live miles away, and our nice neighbour has developed their own health issues recently).
Anyway - just wanted to say hi - I know people on this forum have far worse problems, but thanks letting me vent.
Cheers
Drew
I'm sorry to introduce myself on such a downbeat note, but I'm having a few problems and not sure which way to turn. I hope the following makes sense, as it's a bit complex.
Background is: my wife has been diagnosed with a few serious - and incurable - genetic conditions; I'm not going to bother you all with the details, but suffice to say she's had to give up her work and now receives higher rate DLA (both care and mobility) as well as support group ESA. Until everything fell off a cliff about 2 years ago, she was working and I still am. We are both in our (late!) 30s.
I'm not quite sure what result I expect from posting this, but to be honest I am struggling right now to be able to keep working and support my wife. She is currently under the care of a number of consultants (most in London, due to the rarity of her condition) and also wheelchair-bound. We live on the South Coast, so getting to the appointments is not something she can do without my taking a day off work.
I've no complaints about the NHS, who have been fantastic in looking after her care, but we do have a lot of appointments - I've done a quick count and we actually had 8 in the last 4 weeks, and that's pretty average for the last few months, which has lead to a few few challenges work-wise for me, as 2 days off per week is not easy.
Anyway, I'm not quite sure why I am writing this post - any light at the end of the tunnel seems to just be an oncoming train!- but my wife is doing a brilliant job of coping. I can't admit it to her, but I am not. We've no-one local who can help me out (both our parents live miles away, and our nice neighbour has developed their own health issues recently).
Anyway - just wanted to say hi - I know people on this forum have far worse problems, but thanks letting me vent.
Cheers
Drew