Strange Life

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I'm a 33 year old British Indian guy currently caring for his mum.

My mum (an immeasurable part of my life, my bestie yes I say that...) was diagnosed with Pancreatic Cancer on August 30th. Life was obviously turned upside down at that moment......

Despite this and the present situation isn't as bad as those initial dark days- though I feel some struggle.....

The range of emotions I have experienced in the past couple months I didn't think I ever would experience, despite a rollercoaster life in general to some degree....

My mums condition is rather stable..... unlike my mind at times. No pain, no vomitting, etc.

Something which was the opposite upon diagnosis.

Also given the incredible drama that has folded in the past couple of months, I can finally share relatively openly.....that it appears cannabis oil is the reason for her condition improving so dramatically

I'll leave this at this point for now, this story warrants and needs much more..nice to meet you all.

Feels like a burden has been lifted 😊

M
Hi - I'm not sure why no one has answered you yet.

I suspect, sadly, that it MIGHT be because of the mention of cannabis oil?

I hate to say this, but sometimes this forum is used by those who want to push or promote something, and they 'disguise' that in a post that sounds genuine, but isn't.

So, perhaps I should start by saying that if that is entirely erroneous, do please say, and then you can be here 'properly', rather than 'improperly', if you see what I mean.

Either way, I expect the moderators will deal with it.

Pancreatic Cancer is one of the VERY worst cancers, simply because it is nearly always diagnosed far, far too late for effective treatment.

However, I can't really think that cannabis oil can do anything other than contribute to palliative care?? It certainly can't be curative/therapeutic (ie, 'anti-cancer'), but of course, when cancer is terminal, as PC so often, often is, alas, then anything that can give a better quality of life for what remains of it, must surely be considered??

As I say, 'over to the moderators' at this point??

(Sorry to be 'sceptical' but sadly we DO attract the 'non-genuine' here sometimes sadly.)
Jenny, you may be right, but I read that as meaning 'cannabis oil = no pain, no vomiting', and I think that is quite likely.
Ah, yes, so clearly NOT being suggested it is 'therapeutic' (again, alas, so many 'bogus' treatments for cancer are 'pushed' at the vulnerable and desparate and fearful - sometimes, if they are simply cheap, might well be justified simply on the grounds that the give comfort and perhaps hope? But if the 'cures' are making money for someone, then that is despicable) (I can't see cannabis oil falling into that category anyway).

Hopefully cannabis is always good as an analgesic and of course a 'soother' (ie, its 'calming' effect) (both invaluable for cancer patients).
Thank you for your responses.

Not pushing anything unless it would help someone here (though ofcourse not yet).

Though the oils themselves do seem to have helped incredibly (Me and my brother researched upon diagnosis, and a series of incidents led us to oil maker who has a proven record of sorts).

Even the doctors are surprised at my mums dramatic improvement- it seems. We/Me are much less panicked despite what will happen on Monday.

It's such a tricky situation. My mum I love so dearly.....and have detached somewhat from the situation today, have to be strong. I mean I really love her so much......she was very upset at times today. No huge upsets today on a personal level thus far. I do need to look after myself. Mum was pretty clingy today bless her 😊😊♥️

Today was another interesting day. The domestic situation in our house remains a situation which is well- just messed up at times.

In summary, the house remains incomplete/unfurnished in parts my dad (possible narcissist- has issues, though retains some amazing traits) despite the situation at hand refused to hire help and finally get it complete and has nowhere near completed the decoration at hand- as he promised he would on countless occasions.

And his priorities are getting the living room to his 'perfectionist standards'. Very hurtful and frustrating for mum in particular at times. The promises were very different....


On the same note, I also believe this has been a long time coming to a degree- something had to give, given the poor relations in our household. P

The situation at home has been the case on and off for years. My dad can be seen as being a possible narcissist and was emotionally abusive for sustained periods. This resulted in a self imposed silence between him v myself/mum for long periods....also this resulted in me and mum taking numerous holidays without him. And myself travelling solo for large periods.

I believe given how bad the abuse, control had got by dad at times towards mum and myself.....I honestly believe the universe/god wanted to see some change. Without sounding like the victim.

I feel things are still improving....some of the scenes where we started behaving as a family again would simply not have emerged without the diagnosis.

Rambling 😊

Back to today.

Me and mum have spent all day together like most days. Mainly upstairs in my room given the mess downstairs - my dad and uncle attempt to get the living room in order for Monday. Still not sure where me, we will end up. Her chemo will be administered initially at the Christie and then a pump taken home,-whereby on the district nurse will come remove it on the 3rd day.

Still feels so surreal......

Mum has taken the oils like a boss as she has been doing (I take about 30-45mins to prepare all pills in morning). A combination of the cannabis rso oil and CBD oil, I put into a vegan shell capsules. 3 times a day.


Out of the prescribed pills from the Hospital, the pancreatin enzyme and omniprazole are the ones I prepare. Yes no sickness, no major digestion issues, this wasn't the case upon diagnosis, she was in dire pain, constantly sick, huge digestion issues.....hence my faith in the oils.....



Currently at my brothers, my mum started feeling really chlostrophobic at times. We nipped out earlier but only briefly.

A hectic but lovely environment.....mum gets to spend some time with her grandchildren. And me with my dear brother and his family.

Thanks for reading, I know a bit all over the place 😊
So so glad that you have found something to relieve the suffering for your Mum.

Sounds like a difficult situation. Glad you have plenty of family around you.

I care for my Mother who is housebound and my brother (disabled and also house bound) has been an immense emotional support to us both. He phones every day, bless him.
My brother died of pancreatic cancer a couple of years ago. He was with his wife in Uruguay where she lived at the time. They tried all sorts of things, frankly with a diagnosis like that surely ANYTHING that makes the last few months more bearable is worth trying. He told me he had some good stuff called the Brompton Cocktail, developed at the Brompton Hospital in London.

"Brompton cocktail A mixture of alcohol, morphine and cocaine given for intractable pain in terminally ill people, especially those dying of cancer. The mixture was evolved at the Brompton Hospital, London. Brompton, name of a hospital in London."

At the time the doctors were telling him he would be well enough to return to work shortly, he was an aircraft engineer who signed planes off as fit to fly!!

We only realised he was terminally ill after reading this, and I had to suggest to him that maybe the doctors were not being as honest as they should be, as I'd had a kidney removed and it took me a very long time to recover from the surgery....
Jacqueline_180912 wrote: ↑
Sun Nov 11, 2018 9:01 pm
So so glad that you have found something to relieve the suffering for your Mum.

Sounds like a difficult situation. Glad you have plenty of family around you.

I care for my Mother who is housebound and my brother (disabled and also house bound) has been an immense emotional support to us both. He phones every day, bless him.
Lovely ♥️♥️♥️ This is awesome

Indian culture-huge huge emphasis on family.
bowlingbun wrote: ↑
Mon Nov 12, 2018 11:46 am
My brother died of pancreatic cancer a couple of years ago. He was with his wife in Uruguay where she lived at the time. They tried all sorts of things, frankly with a diagnosis like that surely ANYTHING that makes the last few months more bearable is worth trying. He told me he had some good stuff called the Brompton Cocktail, developed at the Brompton Hospital in London.

"Brompton cocktail A mixture of alcohol, morphine and cocaine given for intractable pain in terminally ill people, especially those dying of cancer. The mixture was evolved at the Brompton Hospital, London. Brompton, name of a hospital in London."

At the time the doctors were telling him he would be well enough to return to work shortly, he was an aircraft engineer who signed planes off as fit to fly!!

We only realised he was terminally ill after reading this, and I had to suggest to him that maybe the doctors were not being as honest as they should be, as I'd had a kidney removed and it took me a very long time to recover from the surgery....
I'm sorry to hear this. Big hug 😘

Yeah it is an awful illness. However i do feel in my mums case we have been given the absolute worse case scenario. And I stand by that beyond pain management, the cannabis oil/CBD oil has stopped the growth at the minimum (a growth that would be expanding very very quickly that according to the consultants biopsy and an expert opinion from abroad). I insist other factors are at work....

Dad's behaviour has considerably improves since chemo begin...



I guess it's my personal beliefs (maybe controversial) but i do feel for all diseases there's more than meets the eye- I honestly do not believe this is purely a physical ailment..


I honestly felt she was scared into starting it chemo given the typical life expectancy of pancreatic cancer patients...


Upon diagnosis the initial consultant was ridiculously tactless all those months ago....

Even beyond what is considered alternative treatment, hundreds of stories exist of even cancers that spraed going into remission-we are optimistic with very good reason..


So mum started chemo on Monday and up until then was absolutely fantastic. Appetite, everything else.....well apart from the tiredness seemingly caused.by the oils. But up until then had gone from bed ridden and in pain....to up and about, eating, drinking, etc....with little of the prescribed medication necessary. And chemo seems to have harmed all that (though hopefully soon we'll have positive). 4kg weight lose what not.

But yeah a bit tense at that this minute given the tiredness caused by chemo, as well the vomitting, lack of appetite, etc.

On a personal front, extremely exhausted myself. Been a long few days. Yeah I do struggle a bit at times......alot. I'm a son ♥️♥️😘

And have been blessed with the most loving mum ever. More tears....as i type this from bed.... I keep phoning my dad every half hour to make sure all is ok.

Mums fine, but hard work getting her to take.the pills-especially this one (hates the smell at present and pills in general, pre chemo was getting used to it)....plus admittedly one of the few times I've been away from her for so a relatively long period.

Got back from the hospital at 4am thanks to dad's lift 😊, myself-my dad has soldiered it and returned early. Bless him. He's trying.

My mums aunty has gone straight to the hospital instead of coming here at home.

The visit to the hospital itself was precautionary....given her raised temperature. But looks like she's soldiered the hard part. She should subject to everything staying the same be discharged. Just hoping the chemo is worth it.

A scan will follow after 2 more cycles, a response would make it operable.

Hopefully there is some light at the end of the tunnel.

More bullets in this battle arrived in the form of wheatgrass juice and broccoli sprout juice arrived a couple days ago.....

However the problem getting much to take them..

Sorry I babble 😘😊

Much love xxx
We had a friend who was told to pack up and move into a hospice, but survived for YEARS in good enough health to take his steam engine to rallies! He was incredibly courageous and determined, the doctors were stunned at his survival.

I agree entirely that there is some unknown factor that means some people manage to overcome health issues that others succumb to, we certainly don't know everything yet. There is always hope.