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Carers UK Forum • New to forum - Page 2
Page 2 of 2

Re: New to forum

Posted: Fri Oct 16, 2020 3:02 pm
by Melly1
Lucy,

It sounds then as if your main battle is to secure funding for GOSH to review your son's care. I have had children in my class who have had this via their local CCG.

I hope you find a way to organise contact that works for you all.

Melly1

Re: New to forum

Posted: Fri Oct 16, 2020 3:12 pm
by Lucy_2010
All i know is that GOSH have raised a safeguarding issue. I think they are resisting treatment because they are saying it is up to the local CCG/paediatrician to request that help. the local paediatrician is admitting that they dont have any expertise in his syndrome, but they arent saying what they are going to do to enlist that expertise. Locking him in his room is not the issue. Finding out what is going on behind the locked door and getting him treatment for what is happening when he is locked in is the issue here. They have no apparent justification for having him locked in every night. My daughter says he is waking up half of the time . She is frightened of telling anyone about her brother being locked in every night and what happens behind the locked door.