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Carers UK Forum • new to forum
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new to forum

Posted: Fri Dec 12, 2008 11:04 am
by Guest
Hi all my name is lucy and I'm the carer to my 1 year old son euan who has cystinosis. Its a rare condition currently affecting his renal function. Wud love to hear off anyone else in a similar situation with a child of any age! Lucy x

Welcome Lucy. I hope you

Posted: Fri Dec 12, 2008 11:09 am
by pixie
Welcome Lucy. I hope you find someone here with similar difficulties and soon feel at home here. Mine all have Autism and a few other things.

hello lucy welcome to the forum

Posted: Fri Dec 12, 2008 3:43 pm
by krys
hello lucy

welcome to the forum Image

krys

Hi Lucy Do you know

Posted: Fri Dec 12, 2008 4:06 pm
by Matt Hill
Hi Lucy

Do you know about the charity contact-a-family? They were set up by parents of disabled children with rare conditions. They have a helpline and a good website. And they may be able to put you in touch with people who also have kids with cystinosis.

Worth checking them out.

www.cafamily.org.uk

In their directory for Cystinosis they have a link to this charity called CLIMB
http://www.cafamily.org.uk/medicalinfor ... m24_6.html

Hope that's useful and welcome to the forum!

matt

Hi Lucy and welcome, we

Posted: Fri Dec 12, 2008 9:25 pm
by Myrtle
Hi Lucy and welcome, we are a friendly bunch here Image

Hi Lucy, Just want to add

Posted: Fri Dec 12, 2008 9:59 pm
by rosemary
Hi Lucy,

Just want to add my welcome too.Hope you get time to take a look round,so much information to be found.

Rosemary

Hi Lucy and welcome

Posted: Fri Dec 12, 2008 11:41 pm
by Tonyd
Hi Lucy and welcome

Hi Lucy nice to meet

Posted: Sat Dec 13, 2008 12:54 pm
by JohnT
Hi Lucy nice to meet you and welcome to the forum Image