[phpBB Debug] PHP Warning: in file [ROOT]/phpbb/session.php on line 585: sizeof(): Parameter must be an array or an object that implements Countable
[phpBB Debug] PHP Warning: in file [ROOT]/phpbb/session.php on line 641: sizeof(): Parameter must be an array or an object that implements Countable
Carers UK Forum • new to forum
Page 1 of 1

new to forum

Posted: Fri Sep 18, 2015 9:21 pm
by LINDA_15091
HELLO EVERYONE
I HAVE JOINED CARERS UK AS I WAS NOT HAVING MUCH LUCK WITH HELP AND ADVICE ON THE MS SOCIETY SITE, MY HUSBAND WAS DIAGNOSED IN JUNE WITH MS, HAVING BEEN TOLD THAT HE HAD HAD 2 STROKES LAST YEAR, WE HAVE BEEN TOLD HE HAS PROBABLY HAD IT ABOUT 15 YEARS, WHAT I CAN'T SEEM TO FIND OUT IS HOW THEY DIAGNOSE THE DIFFERENT TYPES, INITIALLY WE WERE TOLD HE HAD RELAPSING REMITTING, BUT HE HAS HAD NO REMIT FROM MAY LAST YEAR HIS LEGS ARE GETIING WORSE BY THE DAY HE IS STRUGGLING ON THE STAIRS HIS MEMORY IS WORSE, HE HAS BLADDER PROBLEMS THAT HE NEVER HAD BEFORE BUT GP HAPPY TO PASS THE BUCK. AND STILL WE HAVE NOT SEEN AN MS CONSULTANT, ALTHOUGH WE DO HAVE AN APPOINTMENT NEXT WEEK. ANY HELP AND ADVICE WOULD BE MUCH APPRECIATED. SORRY IT IS ALL IN UPPER CASE BUT I HAVE POOR EYESIGHT.

Re: new to forum

Posted: Fri Sep 18, 2015 11:30 pm
by jenny lucas
Linda, hi - I don't have any experience to offer from myself on MS (dementia and cancer are my 'specialist subjects'!), but I do know that others here do have experience of caring for someone with MS, and I hope they'll be here to answer you before long.

Other than that, I just wish you welcome to the forum.

Kind regards, Jenny.

PS - I don't know if there is a way to make the font size larger for you, but perhaps one of the moderator knows??

Re: new to forum

Posted: Fri Sep 18, 2015 11:38 pm
by LINDA_15091
THANKS FOR THAT JENNY, IT IS JUST NICE TO GET A REPLY, AND TO KNOW THERE IS PEOPLE OUT THERE WHO MAY POSSIBLY BE IN THE SAME BOAT, HAD NO RESPONSE FROM MS SOCIETY IN 2 WEEKS SO GAVE UP............BUT THANK YOU FOR YOUR RESPONSE MUCH APPRECIATED. LINDA X

Re: new to forum

Posted: Sat Sep 19, 2015 7:56 am
by MumWhoCares
Hi Linda and welcome :)

Can only suggest trying the MS Society again; I rang them last week, spoke to a very nice lady straight away and had a call back from a very helpful man a couple of days later who talked me through the whole diagnostic process and answered a couple of questions I had about it due to conflicting information from doctors, so it might be that you've just got lost in the system and be worth trying them again, just in case?

Re: new to forum

Posted: Sat Sep 19, 2015 9:13 am
by jenny lucas
Linda, hi - what about trying out some of the MS patient/carer forums? They might be a bit more responsive?

eg:

http://community.mssociety.org.uk/forum

Re: new to forum

Posted: Sat Sep 19, 2015 10:51 pm
by LINDA_15091
THANKS FOR ALL THE HELP AND ADVICE MUCH APPRECIATED , WILL CERTAINLY GIVE MS SOCIETY A RING ...THANKS