Just saying Hi. I think there are lots of people here who care for children. I look after my elderly parents, one has HD and the other suspected dementia. I also have young children of 5 and 7, and can only begin to imagine how hard it must be to have a sick child. You say he has had a tough time lately, which must have been very tough on you too. Is your son able to go to school and participate in normal activities sometime or does his condition really limit what he can do? Please don't feel you have to share this, but if it helps to share your story, please do. I know it has helped me tremendously to vent anger, frustration, sadness and guilt here.
Take care.