Mum deteriorated in hospital-part 2

[Charles_2112]

The Fast Track pathway avoids the need for the usual assessment process and would actually mean that the funding would be agreed without needing the four week assessment period. So there will be no bills for her to pay.

There's no easy way to say this but you need to know...

It's only used in situations where the patient is deteriorating - not taking nutrition and limiting her fluid intake would be a major indicator of this - and expected to be entering a "terminal phase" soon. So the process is changed for those individuals to remove the stress on them and on their family at a time when they can well do without it. End of life - which is what they mean by "terminal phase" - is where someone is expected to die within a three month timeframe. Your Mum isn't there yet but the fact that they are looking at the Fast Track means that they think it may not be very long in coming.

[Sharon_22021234]

Hi everyone,

Well another change today, no wonder my head is in bits, not only have the worry for mums care whilst in hospital but now have to spend time finding out what’s right and what’s wrong with what I get told.
So occupational health at the hospital tell me mum is being fast tracked the doctors tell me mum is being fast tracked, the ward manager only yesterday told me mum is being fast tracked and went through everything with me and put all her cards on the table regarding health. I went on nhs.gov website last night where it clearly tells me someone in mums condition is fast tracked.

So today I get a call from chc who tell me mum is not being fast tracked and the hospital basically don’t know the up to date information. Not only that now I’ve been told that there are available homes for mum all of which are in the borough of Salford because that is mums borough but are all miles away from where we live. Not only that we are not able to visit any of them or get to choose which one we are happy with, I’ve been online and let me tell you one of them is a definite no chance the other two one looks great but the other very questionable. The information I can get on either is very limited and I am surprised at the lack of reviews for any of them the most being 18 one doesn’t even have a website.

Then I get told a assessment will be done within the four weeks that will be funded but there is a chance the costs may not be covered after that depending on the outcome.

Does anyone have any recommendations of who can help me this this whole process just does not sound right or fair to me.

[Sharon_22021234]

D2A letter to client or family for nursing home admissions.doc

(745.5 KiB) Downloaded 44 times

[bowlingbun]

Have a look at the CHC Framework which talks about Human Rights, especially the right to a normal family life. Mum has a RIGHT to be in her own area so that she can see friends and family.
I used this when mum's hospital wanted to send her to a home the far side of Southampton from me. A computer search on a distance basis clearly didn't take into consideration the fact that Southampton Water was between me and the home!!

[Sharon_22021234]

Hi everyone,

Update on mums situation, after 7 weeks in hospital she is finally coming home. Well I’m sure you are all as mistified as I am. So I took the advise of you guys and had a best interest meeting, notes in hand.
We all came to a dead lock because even though being told mum was not allowed home because we could only provide 18 of care and 24 /7 which they felt she need, we would not except the awful care homes they where going to put me in. So as the hospital wanted their bed back 360 degree turn around, so mum has just spent 3 weeks in hospital for absolutely no reason.

Anyway she is suppose to come home on Thursday this week, but again failings, as her hospital bed cannot be delivered for Thursday so everyone has now had to change what has been arranged for Thursday including district nurses.

I just pray she gets home on Friday, where we can give her the love and care she needs in her last days.

Thank you guys so much for all your support through out this very frustrating and upsetting time.

[Charles_2112]

It's no wonder so many of us say it's not the caring that gets us down, so much as dealing with the professionals.

I hope everything goes to plan on Friday and your mum is able to come home. Take care of you, too.

[Sharon_22021234]

I have previously posts regarding mums situation whilst in hospital. This all started in January and after a stay of 8 weeks mum finally came home. But sadly after four days had to go into A&E because she rolled off her bed. She was checked over by the ambulance paramedics and was fine other than a slight bump on her head which they wanted to check over, but other than that no damaged caused. Went into A&E at 7am on 9th March 2022 at 10am received a call from them telling me that mum had gone head first of the trolley and smashed her face and broken her 4th vertebrate. She is still in hospital and no treatment can be given because of her dementia. Now they tell us mum has to go into a nursing home no choice to come home. But after almost two months, sending support plans out to all nursing homes across Salford and Trafford only one home will take her and it’s the biggest dump ever. I did myself find one with available beds in urmston that would take mum but once they received the support plan, which by the way I am not able to see said no along with all the rest. So eventually without saying too much I found out the reason everyone was saying no this was because mums support plan said she needed one to one 24 hour care. And they still will not say if she gets chc funded until I put mum in a nursing home which when I visited can you believe I was informed by the manager that after explaining mums accident in A&E tole me that if mum was to pass away within 6 months of the accident she would have to have a post mortam who does that, I was horrified as I always was reassured this would not be the case because she carries a statement of intent. This is the only nursing home that will take mum. For the privilege of this if she does not get funded by chc which by the way is £700 per week with a top up of £50 which they want me to pay, the cost then to mum self funding rises to £1106 per week so if you have nothing it’s 750 but if you have a house which you have worked to get all your life to be able to leave your kids a little something they will have that thank you very much and increase your payments by £350 per week for a home you would not even put your dog in. But after fighting chc and social care I give up, I’m exhausted with it all at a time my mum is
dying o sorry chc say she is not actively dying but on a slow decline. I GIVE UP.

[bowlingbun]

It sounds like you have been given so much awful information.
If mum fell off the trolley in hospital, then the hospital have been negligent, and the hospital must ensure that mum's care is suitable and appropriate, the hospital must pay.
There is absolutely NO QUESTION of you or mum paying towards her care - £750 a week is really cheap, a nursing home here is £10000 plus a week by the way.

I would suggest that you contact a medical negligence lawyer as soon as possible.
In the meantime, look at the CQC list of nursing homes as near to your home as possible. Visit the nearest one to you, and then work your way out to those a bit further away.

I would ring the CEO's office, and say that they MUST sort out mum's ongoing care asap. Even threaten them with going to the press.

[Sharon_22021234]

Hi bowlingbun, thank you for you reply. £750 per week if so pay but if self funding £1100 per week, is that right you have put £10000 per week we’re you are or a typo?
Trust me we have tried two borough’s to find mum a home but no one will except her apart from the one I mentioned.
I have a formal complaint against the hospital and the cqc have 15 failings in total they want reports for but the A&E accident is more investigation so much so once report completed goes in front of panel.
I don’t really want to make a claim against the nhs but your right they should carry the response ability of covering the nursing home cost because due to them she now has to go into one. I am awaiting reports coming back first to see what that outcome is.

[bowlingbun]

Yes, one thousand plus. Oooops!
Mum should be assessed for NHS Continuing Healthcare, I find it inexcusable that they haven't done that already. Good that CQC are investigating now, a very serious situation yet still ongoing and causing you untold stress in the process.