Hi,
I'm really new to all this. My husband was diagnosed with an aggressive form of MS back in March of this year. Everything has changed.
I worked full-time, he was a house dad. Within just 6 weeks of his diagnosis I had to give up work due to him not being able to care for the children on his own anymore. Our girls are 13, 8 and 5. The 13yr old would help as much as she could when I was in work, but this just didn't seem fair, she was having to do everything for her sisters as a lot of my working hours were the evenings when they were home from school. I was doing management training within the pub/restaurant environment and I absolutely loved my job, my end goal was to run my own place, it always has been since I was a child.
My husband is so different to the man I married, he was so active, always up and about and doing something. Now due to the way the MS has attacked him, he is so restricted. I can't leave him on his own as he needs constant supervision in case he trips/falls etc due to his weakness. He can't walk more than a few metres at a time so going on our weekend walks with the girls has gone, taking the dog out is impossible for him now.
We have had lots of small adaptions done to our home, but now they are looking into bigger changes, possibly even moving us.
I feel awful, we are stuck together all the time, and get no space and when I do I feel so guilty. I try and go to the gym a couple of evenings as the eldest is home but I spend the whole time fretting he is ok, and struggling with my own guilt that I have gone out and he is stuck indoors again!
I feel trapped, trapped by our situation and trapped by my own feelings towards our situation.
I'm really new to all this. My husband was diagnosed with an aggressive form of MS back in March of this year. Everything has changed.
I worked full-time, he was a house dad. Within just 6 weeks of his diagnosis I had to give up work due to him not being able to care for the children on his own anymore. Our girls are 13, 8 and 5. The 13yr old would help as much as she could when I was in work, but this just didn't seem fair, she was having to do everything for her sisters as a lot of my working hours were the evenings when they were home from school. I was doing management training within the pub/restaurant environment and I absolutely loved my job, my end goal was to run my own place, it always has been since I was a child.
My husband is so different to the man I married, he was so active, always up and about and doing something. Now due to the way the MS has attacked him, he is so restricted. I can't leave him on his own as he needs constant supervision in case he trips/falls etc due to his weakness. He can't walk more than a few metres at a time so going on our weekend walks with the girls has gone, taking the dog out is impossible for him now.
We have had lots of small adaptions done to our home, but now they are looking into bigger changes, possibly even moving us.
I feel awful, we are stuck together all the time, and get no space and when I do I feel so guilty. I try and go to the gym a couple of evenings as the eldest is home but I spend the whole time fretting he is ok, and struggling with my own guilt that I have gone out and he is stuck indoors again!
I feel trapped, trapped by our situation and trapped by my own feelings towards our situation.