How much family support do you get ?

[Jennifer_1811]

I care for my husband for 15 years he has two brothers that come when they like. I make them tea and sandwiches sometimes I make them a dinner My problem is Why would they not suggest taking my husband out for a walk or a coffee whatever They come and tell him everything thing they do and where they go. With each other I did ask once if they would take him out one day just too cheer him up The reply was. No way I couldn’t cope with him. Am I angry No But it baffles me why they come here Are we just a day out for them or somewhere too go

[bowlingbun]

Hi Jennifer,

We call relatives like that "Helicopters". Both my own brothers seldom visited mum, and I mean maybe go a whole year without seeing her!!! The they would tell me what MORE I should be doing for her.

Stop being so nice to them. Make them a cuppa, but no sandwiches, certainly no dinner. You are doing more than enough already. Tell them that you are "too busy" to do anything. Suggest that next time they have something before they visit.

[Jennifer_1811]

I love that term a helicopter I’m going too call them that the next time they visit When they ask what I mean I will gladly tell them. One of the brothers has a very Lonely sad life as his own family have no time for him and treat him like he dosnt exist I have a natural caring out look I can’t be nasty I think maybe they are jealous that after all these we didn’t fall apart We got stronger.

[Karen Dee]

Good for you, Jennifer. You sound like a really lovely lady. Your husband is very lucky having you as his wife and carer.
It sounds like the brothers are more trouble than they're worth. They probably feel that by visiting their disabled brother they are 'doing their bit' but they are actually making you more work.
You need to be more assertive. Next time they come round say 'will you please take your brother to the pub/cafe/park or whatever because I'm busy today and have to go out.'
If you say that every time they come round they will soon get the message.

[Elizabeth_1602123]

Just tell them, that your husband wants to be taken out, to the café,pub,whatever. If they say again they cant cope, ask what specifically is it they cant cope with? and deal with that problem.
Tell them you cant afford to be providing dinners and snacks on carers allowance and its their turn now. If they don't step up, then they either don't come or if they do I'd go out and just leave them to drink water.
I don't get any support with My Mum, she has seen her brother 4 times in 20 years and he lives half an hour away. I wont ever talk to him/ his wife and my cousin ever again. My Mum is going into hospital in a week or so and she has told them she will ring them on her discharge.

[DishRag]

Maybe just tell them you need to go out and do something when they come, get them used to taking some responsibility and learn to manage. Maybe there’s a risk you’ll put them off coming, but how positive a contribution are their visits otherwise? Maybe it would be worth your while thinking of it as an investment of your time, instead of making meals etc. to train them up, so they learn to manage .. give you a break etc

[Ayjay]

Am I angry No But it baffles me why they come here Are we just a day out for them or somewhere to go

It could just be that they are close and want to see their brother. This doesn't absolve them of the responsibility of perhaps taking him out now and again, but could answer your question.

During WW2, my father and his brother, one in the Tank Corps in N Africa and the other in the Air Sea Rescue managed to get together for nothing more than a beer together when my father was stationed in the Med.

I get no family help at all with my wife as they are all (not that there's many) either too far away, or in one case very much out of favour with my wife and myself.

btw, it may be of interest to some that my father always said the most danger he was ever in was when towing targets for the RAF to shoot at.

[bowlingbun]

It wouldn't be unreasonable for them to give you reasonable notice of their visit, and then bring with them some food for you all to share. After all, you are caring for their brother 24/7, they only see him for a few hours every...

[Melly1]

Maybe just tell them you need to go out and do something when they come, get them used to taking some responsibility and learn to manage. Maybe there’s a risk you’ll put them off coming, but how positive a contribution are their visits otherwise? Maybe it would be worth your while thinking of it as an investment of your time, instead of making meals etc. to train them up, so they learn to manage .. give you a break etc

I think this sounds an excellent plan!

Melly1

[Stephen_16071]

I think this is common, my own Sister lives five minutes away and randomly visited for an hour a fortnight when Mum became really ill. No notice, just turn up, sit on a chair while constantly counting down the hour till she could escape.

At the risk of being shouted at by other members, they simply do it to appease the guilt they feel for doing nothing, they tell themselves "I've visited, done my bit and all is fine" then forget about what the main carer is going through.

When Mum was put into a Nursing home and I was deliberating bringing Mum home or staying in the Nursing home, I was told in no uncertain terms "If anything happens to Mum in the Home, her death is on your hands". Lovely!!!!

Mums now been home for 27 days, during which we have had two random 1 hour visits and one apologetic text for being a no-show.