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Newbie - Carers UK Forum


Tell us a bit about yourself here.
Hi to everyone - just want to introduce myself and tell you a bit about my life.
For me, life changed dramatically in July this year when my husband was diagnosed with Korsakoff’s syndrome (Alcoholic Brain Injury). At the time I was happily employed as a Children’s Support Worker and my husband was sadly spending much of his day socialising with friends in the local ‘watering holes’ whilst I was at work. One morning he woke up feeling ‘ill’ and, following a massive seizure, ended up spending the next 11 weeks in hospital & a specialist dementia home, where they eventually gave us the Korsakoff’s diagnosis. In basic terms it means that the area of the brain that deals with short term memory has been destroyed, resulting in a form of dementia. As well as short term memory issues we are also struggling with daily living as the brain ‘fills in gaps’ with imagined scenarios & situations (confabulation).
We are now at home and struggling. I have given up work and became a full time carer for my husband ; have sold our house and moved out of the area in an attempt to break old habits and start a new routine. It has been a nightmare & both physically and emotionally demanding. My husband is not only suffering from dementia but also severe depression and anxiety as much of the time he is ‘aware’ of what is happening and he is struggling to come to terms with life, often telling me that there is no point in living like this. It is heartbreaking for us both.
From a personal perspective, I have found the lack of knowledge, understanding and support re Korsakoff’s incredibly frustrating! There don’t appear to be any support groups specifically related to the condition and although the Alzheimer’s Society were really lovely, there was very little support they could offer as all of their groups etc were not deemed to be appropriate for a 67 year old man with his type of dementia.
If there is anyone out there who is struggling with the same problems I would be very, very grateful to hear from you!!
Thanks for ‘listening’!
Hiya and a warm welcome to the forum.
A very warm welcome from me too. I find it very disappointing that the Alzheimers Society weren't welcoming, as I understood the covered all sorts of dementia. As you have moved recently, whilst your husband has lost his drinking mates, you've lost yours too. Have you managed to get any help, respite, support etc. in your new area?
Hi Dawn,
I'd not heard of this syndrome either so I've just googled and found it seems to be a deficiency of Thiamine (B1).
I don't know if I'm allowed to link to the site but there seemed to be some positive info out there that might help.

Hope you didn't mind me looking it up. I'm new myself and scared of making mistakes.
Scruffy, we always say in our family that the person who has never made a mistake has never made/done anything!
Hi Dawn and welcome Image Image

Scruffy, don't worry about making mistakes Image Image
Hi Dawn - welcome to the forum. I don't have any advice for you but didn't want to pass by awithout saying hello!

Bell x
Hi Dawn, I'm a Newbie too ! x
Hi and welcome Image