Hello, after convincing myself that i wasn't alone. I decided to join the community for a range of reasons one being my own sanity, I have been a sole carer for over 15 years of my aunt who was born with spina bifida, As the years have passed by i have always been the rock that makes sure her needs were met. When she was diagnosed with renal failure my world collapsed for a period but still continued as it was like second nature to me, dealing with extra complications that arose throughout her life. A few years ago her renal failure became really serious and she needed to start hemodialysis, now she has C.K.D Stage 5 and needs to do hemodialysis.
I do get extra help from additional carers that come in to handle the more personal care that she needs but everything else is up to me to handle.
In the process of looking after my aunt my grandmothers arthritis has gotten worse and now need someone to be on hand for her incase of trips or falls. Thankfully they both moved in together and makes my life a little easier. I am currently thinking of applying to become a carer to my grandmother too officially but not sure if the extra money would be worth claiming or better to say as i currently am.
After a while my aunt took the option to dialyze at home, we spoke about the commitment side of what she was asking and i agreed, pleased to say i'm fully trained now to deal with her hemodialysis for her and has added to her quality of life with a little more freedom. Sadly as being her main carer what little time i did have free vanished and now if i'm lucky to grab minutes between usual day to day tasks of normal life. Carers call's and other demands that most of us will know happen during a well structured day. I will hop online to see whats happening in the world outside.
Thank you for taking the time for read.
Shaun
I do get extra help from additional carers that come in to handle the more personal care that she needs but everything else is up to me to handle.
In the process of looking after my aunt my grandmothers arthritis has gotten worse and now need someone to be on hand for her incase of trips or falls. Thankfully they both moved in together and makes my life a little easier. I am currently thinking of applying to become a carer to my grandmother too officially but not sure if the extra money would be worth claiming or better to say as i currently am.
After a while my aunt took the option to dialyze at home, we spoke about the commitment side of what she was asking and i agreed, pleased to say i'm fully trained now to deal with her hemodialysis for her and has added to her quality of life with a little more freedom. Sadly as being her main carer what little time i did have free vanished and now if i'm lucky to grab minutes between usual day to day tasks of normal life. Carers call's and other demands that most of us will know happen during a well structured day. I will hop online to see whats happening in the world outside.
Thank you for taking the time for read.
Shaun