It was hard. I also had issues finding childcare providers who had worked with children with spina bifida and clubbed feet who could watch him for 3/4 hours each day. I was also willing to use his benefit money to pay a private tutor to come work with him whilst I worked. I think that it is a shame we are still having to fight for education. If I cannot find a school, I will think about home schooling him part time instead.
The system is messed up. I recently contested a benefits decision with the help of Citizen's Advice as well. We also had a care needs assessment done and I asked about equipment that could help. Even trying to find equipment that he needs is not easy. We did not get any help from NHS wheelchair services so I had to look elsewhere at other sources. Eventually we privately acquired a good wheelchair with help from a wheelchair engineer.
The schools here are marginally better.
Large chunks of unnecessary requoted posts removed by moderator to aid easier reading and flow of thread.
The system is messed up. I recently contested a benefits decision with the help of Citizen's Advice as well. We also had a care needs assessment done and I asked about equipment that could help. Even trying to find equipment that he needs is not easy. We did not get any help from NHS wheelchair services so I had to look elsewhere at other sources. Eventually we privately acquired a good wheelchair with help from a wheelchair engineer.
The schools here are marginally better.
Large chunks of unnecessary requoted posts removed by moderator to aid easier reading and flow of thread.