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Husband has lost his Attendance Allowance? - Carers UK Forum

Husband has lost his Attendance Allowance?

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After struggling for a while my husband was diagnosed with Mild Cognative Impairment 2 years ago and has had annual tests to monitor him. Due to his decline he was diagnosed with Alziemers/vascular dementia mixed in November and was put on medication. He is 72 and applied for Attendance Allowance and was awarded the higher rate plus we are in receipt of pension credit. We had to complete a new form for April (I assume everyone has to) but the DWP result says there has been a change of decision and he is no longer entitled to Attendance Allowance or carers allowance. I am very confused how they came to this decision as nothing has changed. My husband needs someone with him at all times, he is not safe to cook, dress properly and becomes confused and distressed. He has diabetes and needs help with his insulin injections and monitoring of food. He is partially deaf, and unsteady due to arthritis so frequently stumbles or falls because he is unaware of dangers. I plan to appeal this decision but can anyone advise please I am fearful of not wording things right? Is it ok to ring and find out how they reached new decision before I apply for an official mandatory review?
Hopefully, this isn't a 'real' rejection - it's simply part of the endless stupid 'dance' that local authorites and SS all too often go through now, the sole purpose of which is to delay having to fork out.

SS is probably hoping you will 'give in' and accept their decision (however unjustified) and then that will save them a bob or two...

Remember, all that counts these days is saving money. That's what they are motivated to do.

Others here are highly experienced in working their way through this appalling system of 'deliberate' obstruction to handing people the money they are entitled to (and to which they have contributed in taxes for their whole working lives!)(NEVER think it's 'charity'!). As you surmise, all too often it is a question of using the 'correct' words.

I take it your husband's GP knows how bad the situation is for your husband, healthwise? (ie, dementia-wise?)

I do hope you get a speedy resolution.

(The truly daft thing is - how on EARTH do SS think that someone with dementia 'gets better'?????? THEY DO NOT GET BETTER THEY GET WORSE)
Make sure you don't miss any deadlines DWP set, and be sure to send any request for reconsideration by Recorded Delivery so you have proof of posting etc. It's quite normal to be rejected first time round, so don't panic. The first decision is made by a very junior member of staff, each time you appeal it's passed to someone more senior. (My best friend used to be a DWP manager, so I have inside information). Carers UK has an advice service, you can email them. Or the CAB might be able to help, or a local benefits advice service. It really depends on where you live.
Just don't miss any deadlines. If you appeal etc. within the deadlines if awarded it will eventually be backdated to the date of the original claim.
Hi, Shirley. I think it is unusual to have been awarded Attendance Allowance and then to have decision changed. As far as I know you don't have to fill in another form each April. My Husband has received AA for 4 years and we have never had to fill in any other form, after original one, in relation to claiming it. How long was your Husband actually receiving AA?
Thank you for your comments, I am hoping it is as jenny Lucas says another 'dance' but all the processes are so distressing and full of uncertainty. The appeal time limits to get the wording and evidence they might deem acceptable are a terrifying minefield and lottery.

I have encountered this scenario before myself in 2016, I am disabled as well as suffer from anxiety and depression, my husband was my carer and I lost my higher rate mobility component on the 2016 assessment changing from DLA to PIP process. I appealed and my doctor of 20 years wrote a letter confirming I cannot walk 20m so thankfully it was reinstated. Unfortunately the whole process took so long (due to benefit change backlogs) I lost my Motability car and had to go through the time consuming process of acquiring another suitable Motability car. This was meant to stand until December 2018 but I recently received an update form for April and can only assume everyone has.

Sadly I am going through the same 'dance' thing again at the moment too as although my pain, disability and inability to walk 20m is permanent which was established and accepted in 2016, this years April update form which despite my completing saying 'no change' still resulted in a face to face assessment. I attended in my attendant wheelchair and was not asked to stand or walk. However the decision has resulted in my losing the higher mobility component again partial because apparently I do not take enough painkillers and did not appear anxious at interview!! So I am going through 'the dance' for that again too.

My being able to drive us from A to B is the only way my husband and I can retain a little independence and leave our house so I am worried sick from all angles. My husbands and my own GP are both astounded and cross so are writing letters, I am hopeful these will be enough assurance of our conditions to satisfy the decision makers.

Has anyone faced similar decisions and have apeals been fairly resolved? :(
Linda_160512 wrote:
Sat Apr 28, 2018 7:22 pm
Hi, Shirley. I think it is unusual to have been awarded Attendance Allowance and then to have decision changed. As far as I know you don't have to fill in another form each April. My Husband has received AA for 4 years and we have never had to fill in any other form, after original one, in relation to claiming it. How long was your Husband actually receiving AA?
Hi Linda, He has been getting Attendance Allowance since July 2016 and at the time of the award he was diagnosed as having MCI (mild cognitive impairment) and was just below the Alzheimer's/Dementia threshold. The doctors and specialists had been scanning testing and monitoring him since 2015 as he had continued to deteriorate. He was finally diagnosed with Alzheimer's/Vascular Dementia Mixed at the end of 2017.

I have no idea what prompted the DWP to need us to complete a new form as they accepted his updated diagnosis at the end of 2017 without issue. It seems ludicrous that he has a full diagnosis showing he will definitely not improve even if the medication slows down the disease. We were told the prognosis for decline is between 4 and 7 years starting from initial noticeable problems pre dementia diagnosis which is heart-breaking without all this added uncertainty :(
I am new to this forum this is my first post and I was not sure how to post. I am wondering if I have posted it in the most relevant place. Could a member advise and possibly move my post to the correct place? Many thanks
Hi
I only ever applied for AA once for Dad and then once again to increase to higher rate. , it was never reviewed . That is absurd as any kind of dementia is progressive, it's not suddenly going to get better.
When you reapply, to get the higher rate, you need to stress that you are there over night to keep an eye on things, risk of falls, confusion in the evening (sundowning) , needs assistance to bathroom in the dark- that sort of thing.
If you are worried about filling in the form properly, I've read on hear that Age UK will have someone who can help with the wording.
SHIRLEY_180412 wrote:
Sun Apr 29, 2018 2:09 am
I am new to this forum this is my first post and I was not sure how to post. I am wondering if I have posted it in the most relevant place. Could a member advise and possibly move my post to the correct place? Many thanks
Hi Shirley - your topic is fine here in the New Members introductory section :D

susieq
Forum Moderator
Thank you x