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Carers UK Forum • First Post - Page 2
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Re: First Post

Posted: Tue Jan 22, 2013 11:22 pm
by sandram9898
Hi Sue and welcome, I care for my 21 years old and have done from birth, I love him to bit and would not change him for the world, but there are times when I just have to go into my garage and scream, he has autism, learning difficulties and OCD along with many medical problems including epilepsy, he repeats the same thing over and over again day and night and sometimes it just gets to me, hence the screaming in the garage. I know he cannot help it but when I have been asked the same question a thousand times over 3 days well what can I say. This is made worse by the fact that he looks "normal" and unless you speak to him you really would not know there was anything wrong with him, the amount of times I have been told how lovely he is and what do I have to complain about, but they do not live with him 24hrs a day 7 days a week. Because of his OCD and autism he has thousands of rituals and routines he has to do everyday, otherwise he gets really stressed and has panic attacks but I know most of them so I just go along with his routines to keep him happy. Everyone always feels guilty about having a rant on here but it is the best placed to have one as everyone knows exactly what you are going through, so anytime you need to rant or vent just do it and dont feel guilty Image Sandra.

Re: First Post

Posted: Wed Jan 23, 2013 7:31 am
by crocus
the contents of our kitchen cupboards have been the same for 24 years he has no idea where to put what or where to find anything
Been there done that worn the straightjacket.........
At the moment there is a packet of paracetamol in the bread bin Image
Ive found my coat in with his shirts and before now he has mistaken the laundry box for the loo Image
The written instructions dont mean he reads them and it stops him asking - it just means that when he asks I dont have to say it all over again - I just point him to the appropriate notice Image

Hard isnt it? Then you get the people who ask "well why is he disabled?"
I have found this site a sanity saver

Re: First Post

Posted: Wed Jan 23, 2013 8:46 am
by susieq
Hello Sue and welcome to the forum Image

Thanks to both of you how much can I write and moan about!!!! There is so much I feel I just need to get out is there a limit!!!!

Sue x

no limits whatsoever - moan to your heart's content; always better out than in Image

But the main thing is - do you get any time to yourself ? It is important to have 'me' time when caring 24/7. If you haven't already had a Carer's Assessment try to get one arranged as soon as possible (your GP will have the telephone numbers for Adult Services (AKA Social Services) in your area.

Re: First Post

Posted: Wed Jan 23, 2013 11:58 am
by phoebe
Hi, Sue, and a welcome from me too, also welcome to Jamie and Tanya.
Sue, don't worry about wittering on, that's what we're all here for. You can have a good old virtual scream here, and we will all understand where you're coming from. Can you manage to organise some "me time" at all? easier said than done, I know, but would do you good.
Love Phoebe x

Re: First Post

Posted: Wed Jan 23, 2013 5:17 pm
by Myrtle
Hi Sue and welcome Image

Re: First Post

Posted: Wed Jan 23, 2013 5:59 pm
by Brindleboy123
Hi Suan...warm welcome from me too and certainly no limits here!

Bell x

Re: First Post

Posted: Mon Jan 28, 2013 8:42 am
by Squirtymcburty
Hi Sue
How is the trip planning going, are you any nearer to sorting things out.

How did your weekend go, do anything nice, I went clothes shopping with my daughters, got myself a couple of outfits, I am not a great shopper but it was nice and now I have some stuff in a bag waiting to be worn.

My youngest passed her driving test on Thursday last week, it is so nice to think she can get out and about by herself (we live out in the countryside, with a rubbish transport system)

Your location doesn't appear on your post, I feel like I want to give you a very big hug Image
I have added you as a friend, and would be happy to let you rant at me whenever you like


Re: First Post

Posted: Mon Jan 28, 2013 10:20 am
by silverday
Hello Sue
Welcome, I am new too and I find this site really helpful knowing that you are not alone.
I know what you mean about repeating things again and again. My mum often has conversations with people not there - if I challenge her I make her aggressive to me, if not she is confirmed in her beliefs. I just try not to let it sink in, but much much easier to say than do.
It is important to have 'me' time. I know Crossroads have a sitting service, but not sure if that is nationwide.
All the best.