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Finally plucked up the courage to post - Page 2 - Carers UK Forum

Finally plucked up the courage to post

Tell us a bit about yourself here.
Welcome Roverjay

Wonder
Hi Roverjay,

Welcome to the forum. I don't care for a stoke victim as I look after my mother who has Alzheimers and high blood pressure. I do have some knowledge of what it must be like for you as when Mum was younger she cared for my Gran who had several strokes. Mum moved Gran into her home and did everything for her. Ironically I'm the carer now for Mum but in different circumstances.

I'm sure you'll make some good friends on here and just shout if you need any advice.

Elaine Image
Hello and welcome Image
Image hiya this site will be helpful if only to offload, whatever the issue we all go through, theres always someone to post too n who understands and you mat find things out that no G.P or hospital will tell you....


take care x
Hi jay,
My partner (33) has a brain injury. It's been 3 and a half years since his accident. Brain injury (such as stroke) is hard. The person you love is right in front of you, yet at times, not at all. I love my partner dearly as I remember how amazing he was but now he is childish, selfish at times, and cannot talk, so has not been able to tell me how he feels for all this time. It is unbelievably hard. I keep trying to tell myself it is the injury, not him. Most days when I get home from working, he doesn't even acknowledge me. His eye contact is very bad. It upsets me all the time. What makes it harder is not getting support. I have fought hammer and nail for the support we get and I have made a real pain in the ass of myself. Don't be afraid to do whatever it takes. Threaten legal action - whatever!!! On a practical note, you might want to get in touch with Headway, I am sure there will be one in your area. They are the brain injury charity and often have carers evening etc, to share tips and advice. You might have a case for neglect - especially for the lack of physio. Also look up POVA - protection of vulnerable adults - they may be able to advise. There may also be community brain injuries teams in your area as well, that could top up help. You shouldn't have to rely on just nurses for help. you need specialist neuro help. It makes me so mad to hear your struggle, I really feel for you. Fight fight fight. It is stupid by I have found with the NHS, he who shouts the loudest, so to speak... very very best wishes, let us know how you get along. Where are you based btw? xx
Well done for joining in Jay. My wifes had TIA's Mini strokes and it's wrecked our lives. I do everything myself at the moment, but some days I wonder how much longer I can carry on. Then she seems to get well enough to get out and life dosen't seem so bad.

Take care

Pete