CAROL_19061234567 wrote: ↑
Thu Dec 12, 2019 7:30 pm
I sometimes feel as if I don't have a life of my own and can't cope but I get over it and carry on.
You're far from alone there, it's very common. I'm possibly better fixed than some as I get some time to myself most days - I make sure of it - but things don't always go to plan.
Take yesterday, Wednesday is a day when no carer comes to wash and dress my wife, (our choice, we pay them for four mornings per week), so it's all down to me - she had a (first) trip to the Gym arranged at the suggestion of her Neuro consultant to improve her core strength.
We had to be there at 11:00am, that meant leaving home at 10:00, so no half hour lie-in for me on a non-carer day as l usually do, in actual fact I got up 30 minutes earlier than usual. Gym is a two hour session a 40 minute drive away - no point in going home, just hang around for two hours. Got home at 2:00, made lunch, cleared up and by 3:00 I was free for 45 minutes, (I glazed some pots), then it's time to make a cup of tea for us both and then start on dinner. Dinner at 7:00, finished by 7:30, cleared that away and went and sat for a nicotine break, my recent fatigue problem then re-appeared with a vengeance.
I'd just got moving again at 8:30 to start the washing up when my wife-bell rang. She'd bypassed her catheter and consequently wee- ed in her wheelchair. Put her on the bed, cleaned her up, then the fun begins, wash the hoist sling, wash her trousers, wash my trousers (I sat on the wheel chair to drive it out of the bedroom), wash the wheelchair cushion cover etc etc.
I actually did last night's washing up this morning whilst the carer was here.