Dear Joyce
Your most recent post is far more reassuring! I'm so glad you went to the experts at Carers UK, and they gave you sound advice.
When will you be seeing or contacting the social worker for your mum's affairs? Make it today!
It's always horrible when there is a family falling out, when all you want is to be able to get on with looking after your mum. But sometimes, alas, we DO have to 'stand up for ourselves' and do difficult things for the right reason.
So many of us join the forum with a sudden problem arising (I did - I suddenly 'inherited' the care of my 89 y.o MIL who had been totally independent up until the morning she phoned me to say 'I can't cope!'....and I became her 'instant carer' - it was a huge shock, and I really needed the good folk on this forum to help me work out what I should do, and what was best in a difficult situation which could not, alas, be 'happy', only 'less worse').
I certainly knew absolutely nothing about things like PoA or Carers Allowance or Attendence Allowance or any such things - but I do now! I also discovered here, which might be useful for you too, that if someone in the household has dementia, there should be a reduction in council tax! But you have to tell the Council Tax people - they won't know if you don't tell them!
I do wish you all the best, and hope that at least one of the following now happens:
- Your mum is judged fit enough to make her own decisions about money and takes control back of her pension and anything else she owns
- That she gets control back, but decides she wants YOU to look after her affairs, or assigns her whole pension to you to spend on her care (including your 'wages' so to speak!)
- At the very least, that your family is made to understand that your mum's money is HER money, and that YOU must not be out of pocket for looking after her!
Do keep in touch with us, and let us know how things are going. Although we can't 'fight the battle for you' we CAN keep you fully loaded with the ammunition you need! Which is - information!
As Bowling Bun says on her tagline - Information is Power. It's very true! once you know your rights, you know how to make sure that fairness reigns.
All the very best to you in this. Kind regards, Jenny