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Carers UK Forum • ADHD
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ADHD

Posted: Fri Jul 04, 2014 2:05 pm
by Wendy_1407
Does any one know of any help I can get.I have a son who has ADHD and trats of authuism,I am finding it very to cope with him and every day life.

Re: ADHD

Posted: Fri Jul 04, 2014 5:03 pm
by phoebe
Hi Wendy,
sorry I don't have any practical advice but am sure others will be along shortly with information,
just wanted to say welcome to the forum,
Love Phoebe xx

Re: ADHD

Posted: Fri Jul 04, 2014 5:09 pm
by susieq
Hi Wendy and welcome to the forum :)

Like Phoebe I too have no practical experience of ADHD - but perhaps it would be worthwhile contacting the Carers UK Adviceline; they should be able to point you in the right direction of benefits you are entitled to and any practical support in your area.

Their contact details are here - http://www.carersuk.org/help-and-advice/talk-to-us

Re: ADHD

Posted: Fri Jul 04, 2014 9:59 pm
by bowlingbun
Hi Wendy, my youngest son was labelled hyperactive 35 years ago, along with learning difficulties, it's incredibly tough and no one seemed to realise how hard I was trying and how sleep deprived. We were prescribed Phenergan to help him sleep, it wound him up like a spring and he didn't sleep at all that night - two weeks later we were told he might be allergic to artificial colourings. We cut these out completely and he slept 14 hours a night for a while as he was sleep deprived himself! In my day there was a Hyperactive Childrens Group based in Sussex, I'm afraid I don't have any current information. At the age of 3 he was awarded highest DLA for care and mobility - we gave him some birds custard the night before, he tried to climb the shelves next to the fireplace when the assessor visited, so it was immediately awarded. As he's got older he's slowed down a bit, but it's still exhausting. You don't say how old your son is, but education can be a problem.

Re: ADHD

Posted: Sat Jul 19, 2014 5:41 pm
by Katrina_1407
Hi Wendy,
We have a son that is coming up 18 next year.
I remember very well when he was young when he didn't sleep well, didn't eat very well or wouldn't stay still for very along either. When were told he had ADHD at the age of 7years and then told he had ASPERGERS at the age of 8years, we were more or less told just to get on with it. We were given different meds at different times to try and help with his ADHD, some worked and some just made it worst. As a last resort we were given Ritalin which has really helped him concentrate long enough to learn things at school and he also has been given Melation to help him sleep at night. We were lucky to find a great parent led support group in our area and have made some great friends from this.

We have found that he response very well to small groups better and places that aren't too busy as this just hypes him up to much some foods and drinks also do this too. We also found that it was better for him when we changed him to a special education school as he didn't cope very well in main stream education.

I can tell you it dose get better with age as they do learn to find ways of coping with things, so long as you use things like keeping conversation short and to the point and don't use long big or long words and give them time to process thing. Try to keep to routines and maybe use visual support and always try to let them know if things are going to change in advance as this helps them. You could also check out the NAS website as it is very good.

Re: ADHD

Posted: Sun Jul 20, 2014 12:24 am
by Melly1
Hi Wendy,

and welcome. ADHD and ASD is an exhausting combination to cope with.

Useful organisations are listed here:
http://www.cafamily.org.uk/medical-info ... -disorder/

Requesting a referral to CAMHS may also get you some help and support with how to best manage your son's difficulties. Your GP, school nurse or a social worker could make the referral.

Melly1