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Carers UK Forum • worried
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worried

Posted: Wed May 06, 2015 12:57 am
by Shandy
Hi am carer for husband. He's on lifetime DLA. All this pip benefits stuff scares me. Hearing scary stories about people havingbenefits and taken away? Husband not yet had a letter to claim pip yet?
He injects insulin. Was raped by six men yrs ago, and incontinen
t and has to wear pads 24 x 7. He also had cancerous testicle removed yrs ago now also urinary incontinence. He's got pancreatitis and borderline personality disorder and depression. Am scared in case he's accidentally sanctioned? Or they get a drsision wrong? Atos? Etc etc. He's in bed lots hardly gets out. Sleep disorder too. Am worried? I hear that atos lie!? Abt disabled peoples cond? Forced work? He's had 34 suicide attempts in past. Sectioned etc

Re: worried

Posted: Wed May 06, 2015 9:55 am
by Petal
well it certainly sounds like you have your hands full Shandy!
suggest wait for PIP letter, will say request a home assessment, and don;t forget it's not what illnesses he has it is about how his disabilities affect his daily life, I'm sure Atos will be able to see that from your home visit, so don't get stressed out about something that hasn't happened yet, take care

Re: worried

Posted: Wed May 06, 2015 10:43 am
by crocus
Hubby is on lifetime DLA here too.
I have heard rumours that people on lifetime awards may not be transferred, but that may not be true - perhaps just wishful thinking. I agree with petal, dont worry about that until it comes. If hubby does get the form I will be straight round to CAB for help with filling it in.

Re: worried

Posted: Wed May 06, 2015 2:02 pm
by Shandy
crocus wrote:Hubby is on lifetime DLA here too.
I have heard rumours that people on lifetime awards may not be transferred, but that may not be true - perhaps just wishful thinking. I agree with petal, dont worry about that until it comes. If hubby does get the form I will be straight round to CAB for help with filling it in.
Thnku but am in sidmouth would be far? For u? Are u cab? Xx ty

Re: worried

Posted: Wed May 06, 2015 2:03 pm
by Shandy
Petal wrote:well it certainly sounds like you have your hands full Shandy!
suggest wait for PIP letter, will say request a home assessment, and don;t forget it's not what illnesses he has it is about how his disabilities affect his daily life, I'm sure Atos will be able to see that from your home visit, so don't get stressed out about something that hasn't happened yet, take care
Ty xx

Re: worried

Posted: Wed May 06, 2015 3:06 pm
by rosemary

Re: worried

Posted: Wed May 06, 2015 10:24 pm
by Shandy
Ty

Re: worried

Posted: Wed May 06, 2015 10:47 pm
by crocus
Thats very useful Rosemary. Do you know if they are on track with the time-table?

Re: worried

Posted: Wed May 06, 2015 10:48 pm
by bowlingbun
Try not to worry too much about this. Carers UK has a wonderful helpline, and there are a variety of other services available to help. Not sure about Sidmouth itself, but I'm sure there would be something in Exeter. I love your part of the world. I spent 6 weeks every summer with my grandmother in Colyton, we used to catch the bus to Sidmouth or Seaton regularly. I usually go back at least once a year.

Re: worried

Posted: Wed May 06, 2015 11:58 pm
by Shandy
bowlingbun wrote:Try not to worry too much about this. Carers UK has a wonderful helpline, and there are a variety of other services available to help. Not sure about Sidmouth itself, but I'm sure there would be something in Exeter. I love your part of the world. I spent 6 weeks every summer with my grandmother in Colyton, we used to catch the bus to Sidmouth or Seaton regularly. I usually go back at least once a year.
Nice xx u by the coast?