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Disability-related expenses (DRE) - Carers UK Forum

Disability-related expenses (DRE)

All about money
Hi there

We have been working recently to produce a guide on DRE for carers to use during financial assessments for council or trust (NI) delivered care.

Sharing a true picture of the cost of DRE in these assessments can bring down the amount of weekly care charges significantly, and in some cases offset them altogether.

It would be great if you could share with your fellow carers things that you have had agreed as DRE with your council or trust (including which authority if you don't mind sharing that). There is great power in sharing your successes, and we will aim to include some of them in future versions of the guidance.

Thanks and will post the guide when it goes live too...

Aaron
Aaron,
our LA have very limited understanding of DRE and don't recognise autism related DRE without a fight. They seem to only recognise DRE in relation to incontinence!!

Melly1
Hi Melly, sorry to hear that, it's all too common and there's a real lack of guidance out there (which is why we are publishing our guide in the New Year).

Page 371 of the Care Act Guidance gives some practical information that you could use as the basis of a challenge. It's in the guide, which I'll post as soon as it's ready, but you can also read it here: https://assets.publishing.service.gov.u ... idance.pdf

All best wishes

Aaron
Melly1 wrote:
Mon Dec 20, 2021 5:24 pm
Aaron,
our LA have very limited understanding of DRE and don't recognise autism related DRE without a fight. They seem to only recognise DRE in relation to incontinence!!

Melly1
Thanks Aaron.

Melly1
Hi everyone

Very pleased to share that we have some detailed guidance available on Disability Related Expenses.

https://www.carersuk.org/help-and-advic ... d-expenses

Do please take a look, share your stories and feedback, and let us know if it has helped you at all.

Thanks

Aaron
Very useful information. I'll be in touch with the helpline about my problems with Hampshire.
Equipment aids -
repair insurance scooter/wheelchair etc
Special mattress for particular medical needs
This is incredibly wide. How they will help (or fund you to help yourself) depends on your plan.

Financially - the idea is that it helps you specifically with disability related costs. It can cover costs for support workers, therapies, assistive technology costs or modifications to your home for accessibility. You can also get "consumables" which covers things like continence supplies. In that sense, it helps financially. But ordinary living expenses aren't covered.

Do they give you the money? Depends on how the plan is managed. Agency or plan managed, you don't handle any funds. You just get service providers to claim directly from the NDIA or plan manager. If you are self managed, you can claim the funds online after you've used a service. There are a few exceptions, but it depends on your plan.
Tuquerolvantck, are you sure you're in the UIK?
How do they offset the cost of things that are a one off rather than a once type thing? I’ve spent a fortune in the last 4 weeks since Dad has been home, but other than the internet they’ve pretty much all been one time purchases.