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Carers UK Forum • Walking around a field. - Page 2
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Re: Walking around a field.

Posted: Mon Mar 27, 2017 11:21 am
by bowlingbun
John, I have a real gripe about female workers supporting my son. Yesterday there was an open day at the workshops of the local miniature steam railway. He's passed as a volunteer, but staff won't support him to go. Instead, the member of staff took him to a local touristy village to "look at the shops", in total there can't be more than ten shops, all selling tourist tat. He lives in the middle of the New Forest and loves walking, just not round shops!! Nothing to do with what he wants matters, just what staff want to do - costing the LA about £120 for a full day.

Re: Walking around a field.

Posted: Mon Mar 27, 2017 11:24 am
by John_1407
Yes,that's just it! It's surprising the taste Eliot's shown over the last few years for window-shopping shoes and going for a latte...

Re: Walking around a field.

Posted: Tue Mar 28, 2017 12:28 am
by John_1407
We had the family-being-together time for March on Monday.

They arrived 15 minutes late.
We drove to a country park-40 minutes. The cafe was closed-second time this year.
We walked for 40 minutes.
We drove back for 40 minutes buying Slushies on the way.
In the car, Owen and I held hands,and I could see the back of Eliot's head.

Same again in April. That's it. Where's the United Nations when we need them?

Re: Walking around a field.

Posted: Tue Mar 28, 2017 8:21 am
by Honey Badger
DOLS covers care home/hospital setting, DOL via court of protection should cover anything else.
You mention the potential for SIB/harm to others so I would be very surprised if your sons had not had something similar carried out/in place (I am very familiar with the demands of caring for loved ones with SIB)

In your case I'd question the care workers training and actual experience in working with autistic adults/developmental difficulty etc, it feels like they are trying to swat a fly with a bazooka when it comes to safeguarding by keeping you all in the car like that.

In the same breath, unless your boys have underlying health issues such as immune system/severe reaction to temperature changes etc rain is a bloody poor excuse. Since you have the car are they not packing a bag with a couple extra items of clothing (mess happens) as well as rain covers/weather protection?
Small bag of food/drink incase theres no shops nearby?
Emergency medication etc (anti-seizure and so on) Part of the same safeguarding would be making sure you are able to cope for an hour or two if the vehicle broke down.

This would surely fall under the care workers responsibility of planning properly for the trip (I know it sounds overboard but I am somewhat a prepper when it comes to my charges because the nature of things is anything can happen and I don't like surprises)

Sounds like a complete cop out.. I appreciate its a hard job and the money is not good but that is between them and the agency that got them the work.

There must surely be a better alternative like just going for a walk somewhere nice that isn't packed to the hilt (where there are fewer potential anxiety/sensory triggers) or a nearby area with somewhere to shop more in line with the lads interests.

One thing I would say is while I get where you are coming from with the shopping the carers like to do, don't expect the blokes to be much better (saying this as a man) ultimately it comes down to finding the right carer that has some sort of connection with the caree.

One of my carees has no interest in football (bit of a stereotype I know, but often a common ground amongst the men) whatsoever, however they love watching mma/wrestling programming, that sort of thing.. and gets on with the women because while they often aren't into the fighting, obviously they are more likely to enjoy greased up men rolling about on a mat than male counterparts :)

I feel for your situation having been there/seen it myself, frustrating.

Re: Walking around a field.

Posted: Tue Mar 28, 2017 1:01 pm
by John_1407
Thanks for the comments.
Most of the staff formally worked for Children's Services and were 'seconded' to the bungalow when a council centre was closed down ten years ago. I think it was that or redundancy. My wife's handing the boys and the bungalow over to them must have seemed a godsend.
We live on a busy road-bur route,ambulance station up the road, but staff wait in the car (heater and radio on) while I guide Eliot to it. Odd, really, given the 2:1 thing, and I don't count... Yesterday it was "I've forgotten my coat; I'll wait in the car". We rarely exchange info on Eliot's diet, if he's been to the toilet...
Owen's learnt to surf the net at home and at Day Care. Though they've bought £1,500 pound's worth of equipment, "Owen and Eliot choose to leave the laptops in the safe" at the bungalow.

I don't know how it is in other cities. In Stoke, social services are the boss. They run things their way.

Re: Walking around a field.

Posted: Wed Mar 29, 2017 4:32 pm
by John_1407
Things are getting worse.
They've added something new to Wednesdays. Today we investigated the wealth of local history by going to Hanley museum and viewing the Mesolithic and Holographic Manuscripts exhibits. We went for a coffee after 20 minutes, and contact lasted an hour overall, compared to the two hours it's meant to.
On the way there,I was persistently bullied, with staff continually pressing me to accept that Eliot needed 2:1 care. I was asked five times in a row to accept the the museum visit was in Eliot's best interests, "or the contact will have to be cancelled". I didn't cry or lose my temper, but I suspect that that's the goal.

Eliot an I were left on the curb of one of the busiest intersections in the city while on e member of staff went for the car-park ticket, and another went to chat to a friend. The risk assessment says that that's endangerment.

Re: Walking around a field.

Posted: Wed Mar 29, 2017 5:10 pm
by Colin_17031
You really should consider making a complaint.

Do you know what qualifications the staff have?

It may be worth your while to sign up as a member of the NAS
,National Autistic Society

Re: Walking around a field.

Posted: Wed Mar 29, 2017 5:22 pm
by Colin_17031
Also, I suggest that you get the Social Services leaflet on. How they will treat clients or customers. One is respect

Re: Walking around a field.

Posted: Wed Mar 29, 2017 5:55 pm
by John_1407
As I say, staff have apparently been holding their own Community-Accessing Risk-Assessment meetings to decide if Eliot still needs (a) 2 carers @ £30 per hour for the two, or (b) 1 carer per hour @ £15 total. They've gone for (a) every time.
I've just phoned the psychologist and she sounded a bit surprised that this had been happening without her involvement, and she's arranging a proper assessment. Owen had an incident recently but is still 1:1 but Eliot hasn't had any for years and is 2:1.

There's no local complaints procedure for social-services, except an internal investigation held by themselves. It's possible to go to the Ombudsman, but the council stopped all whole-family contact the day they found out I'd appealed to him, and four years later they still only allow us 24 hours a year.

Re: Walking around a field.

Posted: Wed Mar 29, 2017 7:51 pm
by Colin_17031
As far as I know, and I think there is a mandatory complaints process for all local authorities, There are several Stages of the complaints process.

If you are not satisfied with the outcome of Stage 1 then you can express rejection of that result and ask to go on to the next Stage, which would be passing it on to someone else, such as the NSPCC who would independently investigate, and produce a written report.