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Carers UK Forum • Urgent - Your experiences of social care needed
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Urgent - Your experiences of social care needed

Posted: Thu Jul 09, 2009 1:40 pm
by Steve Carers UK
Hi,

The government is publishing its 'Green Paper on Care and Support' very soon - which will look at the future of social care, what needs to change and how to fund it.

We need your help to show what needs to improve and how failures of the current system are affecting carers, disabled, elderly and ill people and families.

The media is likely to be very interested in this story so we're looking for carers who are willing to talk about their experiences of the social care system to journalists, and have their photo taken (or even be filmed for TV if you'd be happy with that!) with the person/people they care for.

So if you've got a story to tell, have been really let down by social services or want to get a strong message out there that things need to change it'd be great if you could get in touch.

If you think you might be able to help please send me a PM or email at steve.mcintosh@carersuk.org with your contact details so I can give you a quick ring to talk through what sort of things you'd be happy doing. We never give your contact details to journalists without talking it over with you first and you can always say 'no' if it doesn't sound right for you.

Thanks very much,

Steve

How many pages would you

Posted: Thu Jul 09, 2009 2:04 pm
by Lazydaisy
How many pages would you like?! Image

I will PM you and give you an outline of a few problems we have had.

NATIONAL INSURANCE is to be

Posted: Thu Jul 09, 2009 4:14 pm
by g.herschel
NATIONAL INSURANCE is to be increased 2010 to help pay for social care well at least for those who own their own homes .

In my opinion care / rest homes are not fit for purpose before i gave up work we checked out about 10 in our area Newcastle not one was suitable as far as we were concerned, therefore i made the decission to give up work and provide my own social care for STAN .

it costs about £25-000 per year to care for an elderly disabled person in residential social care even allowing for the fact that the elderly "give" up their pension it`s expensive - it is time the government realised that we as families should be the first line in social care we are often told by ministers that we that is families should accept our responsabilites if we have a family member who is able and capable of looking after caring for an elderly disabled relative we should be helped to do so but what do we get the CARERS ALLOWANCE set at the lowest benefit payable £53 per week £2-400 per year if we as carers keep our elderly disabled relatives OUT of the social care system for even just 5 years the saving to the state is massive we also save the N.H.S. a large amount of money as cares prevent many elderly relatives from actualy needing hospital care of course we cant keep our relatives fit and healthy for ever we will one day req social care help but if we can look after our relatives at home we should be rewarded by an increase in the carers allowance .

Does social care include Nursing/residential

Posted: Thu Jul 09, 2009 5:41 pm
by D0r0thyG
Does social care include Nursing/residential homes?

Good point Dorothy, I should've

Posted: Thu Jul 09, 2009 6:00 pm
by Steve Carers UK
Good point Dorothy, I should've explained.

Yes, by 'social care' I meant all social care services run by local councils - things like residential care homes, care support in your home, sitting services, day care centres, meals on wheels, support for carers etc.

Hope that helps!

Many thanks,

Steve

My uncle went into a

Posted: Thu Jul 09, 2009 6:01 pm
by cherish
My uncle went into a nursing home which was chosen for him by the local authority. My uncle hated it and stopped eating in the end and so starved to death. I was caring full-time for my caree at the time and had not been in for several weeks as it is some distance away - three bus journies to get there. However, I wrote letters and cards to him so he would know why I wasn't there. He never knew I had written. I wrote on the back of the envelopes (for the nursing home staff) "Please read this letter to my uncle as he cannot see very well" but no one read them to him. These small things - reading a letter to a relative - make all the difference to people. I live with the thought that my uncle must have felt I'd abandoned him. I am not his next of kin and when I was phoned and told that he had not long to go, it was a massive shock.

When I went in, he was emaciated and skeletal. I read his notes by the bedside. The night nurse had written that he must be turned every two hours - she was doing so. He was being turned every 7 hours during the day though. Staff shortages. I said I did not understand why he was not in hospital. They said no point as they could not force him to eat. He had "given up" they said.

The staff shortages were acute and many of the care assistants only spoke a few words of English. I have taught ESOL and my view is that I would rather have a care assistant with basic English who was caring and dedicated , than someone with excellent English who could not be bothered. Some of my students were, I know, excellent care assistants. However, when your relative is dying and you cannot communicate with the member of staff on duty, it is really difficult. She could say single words but could not make sentences. There should be a duty for care/nursing homes to provide access to basic English lessons if their newly appointed staff speak only single words in English

There should also be much more stimulation for the residents - they should not just be put into a large communal room with a TV in the corner which they can't even see. No interaction, no stimulation. That was the norm when I visited. These places make hundreds of pounds from each resident and on those prices they should be providing activities that engage the residents.

I cannot forget the image of my emaciated uncle, nor the thought that, as he starved himself to death, he must have suffered terribly.

STAN used social care for

Posted: Thu Jul 09, 2009 6:43 pm
by g.herschel
STAN used social care for a few weeks respite plus the time we had to have him admitted against our wish`s while we waited for his hoist and tilting bed i would never ever put anyone in the homes we looked at example they lost his teeth ,specs, shoes all his clothes vanished he was wearing track suits odd slippers a womans pullover shirt with half the buttons missing and the worst thing of all when wt home STAN would ask for the toilet but in PARK HOUSE the put him in a nappy as they were far to lazy to take him to the toilet we left a box of sweets for him and as we could not get into see him for 4 days asked the staff to open the sweets for him when i went back 4 days later sweets unopened in his sink they had left his dirty socks and underwear .
my biggest complaint was when we first left him and he was paying about £750 for the 1 week he was given a en suit room with his own T.V. recliner chair well you get the picture when i went in the next day he was in a tiny room with another old bloke .

STAN had alzheimers but when he was in the so called respite his alzheimers was ok one day he told the old doll he did not want to stay as the place was full of "nutters" we explained that they were not nutters but like him they had alzheimes or dementia STAN said iam not talking about the patients iam talking about the staff need i say more.


oooooooops forgot one girl did talk to STAN but she was Polish and as STAN spent some 5 years in Poland as a p.o.w. he spoke both German and Polski Gindobry?? bet ive spelled it wrong .
POZWALA ABOK CALE DOMI TROSKI ( UWAGA)

Good afternoon everyone, Iv'e just

Posted: Fri Jul 24, 2009 4:34 pm
by bradstonian
Good afternoon everyone,

Iv'e just managed to bring an appointment forward for my sick & very disabled wife from six weeks to five weeks, having almost given up on trying to get through to a department at the local hospital to us. My point being, how about a carers code of practice?

To raise these issues, & pass on useful advice as I know we all do anyway. But as I have discovered today we can ring our local hospital & bring an appointment along a tad earlier with a bit of kind, but gently pursuation. Be positive in this & explain the full problem, for examply, my wife has not eaten for X amount of weeks, she is diabetic for emample, in pain, etc. We all know the dril by now, unfortunalely.

So what does everyone think, A CARERS CODE OF PRACTICE? good idea idea or not? Or am I simply reeinventing the wheel, as so often feels these days.

Thanks for listening, I just want to share my silly excitement with others I suppose, but also am angry at myself for not having done this sooner, say a week ago, & passing something positive form that onto others, I hope.

Sorry to woffle Paul.

Residential social care lets get

Posted: Fri Jul 24, 2009 4:49 pm
by g.herschel
Residential social care lets get one thing clear it is made up of two elements that is your health care and accomodation all this talk of £20-000 up front or installments or even the removal of D.L.A. & A.A. and with it the carers allowance is to fund the health care element only so you will still lose your state pension entitllement to pay for your accommodation so the bigger your private / state / war related pensions are the better accommodation you may get.
one lady in our area thought the whole of her care would be free if she handed over £20k she has savings and own`s her own home when i told her the accommodation was not covered she said but that means i would have to sell my home to pay for the accommdation she has just the basic state pension and is not claiming A.A. as she is in fact not disabled even though she is 93 she lives alone and would enter RESIDENTIAL SOCIAL CARE just for company and security not to be cared for.

Hi Steve, you might not

Posted: Fri Jul 24, 2009 5:08 pm
by marie66
Hi Steve, you might not want mine - they're positive and I sure seem to be in a minority. Image
Let me know if you do.
marie x