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Carers UK Forum • This is the reality for patients
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This is the reality for patients

Posted: Sat Jul 23, 2022 9:57 pm
by Ruth_181012
I don’t know what to do with my despair and know carers will listen

My husband has been in rehab hospital for over 7 months . We have had the written assessment and plans are in place for him to come home. Waiting for care package and building work to be completed so dependent on finding carers . Wheelchair been told will take up to 9 months as it may need to be specially built ,but he can come home without this.
Reason for this post is today when I visited I realised they were short staffed as no staff opened door in fact another visitor left and I went in.
Husband told me this morning he pressed his buzzer as he needed to go to the toilet . All the staff know the morphine at times gives him continence issues. On this occasion he was able to wait. Help came after 1 hour. My despair is that he was told you could have gone in the bed and we could have cleared it up. This is unbelievable no dignity and I’m genuinely shocked and I’m not easily fazed. They implied next time don’t worry go in the bed this is not with bed pan just on sheets.

I did speak to the sister on way out and she acknowledged they were so short staffed.
Didn’t go into all the details aside that he waited along time, I was too upset at the time.
Has anyone ever experienced this level of care !, he will actually be safer and better cared for at home.
Another time he was left on the toilet for about 45 minutes despite ringing bell and screaming out. This is someone who has no mobility and has lost use of hand !
Thanks for reading

Re: This is the reality for patients

Posted: Sat Jul 23, 2022 10:38 pm
by Melly1
Hi Ruth,

I'm not surprised you are despairing. Going in the bed and then sitting in it for an hour would not only have been undignified but also been no good for his skin either. I think I would be reporting this. I hope you get him home soon.

Melly1

Re: This is the reality for patients

Posted: Sat Jul 23, 2022 10:50 pm
by thara_22071
Ruth_181012 wrote:
Sat Jul 23, 2022 9:57 pm
I don’t know what to do with my despair and know carers will listen

My husband has been in rehab hospital for over 7 months . We have had the written assessment and plans are in place for him to come home. Waiting for care package and building work to be completed so dependent on finding carers . Wheelchair been told will take up to 9 months as it may need to be specially built ,but he can come home without this.
Reason for this post is today when I visited I realised they were short staffed as no staff opened door in fact another visitor left and I went in.
Husband told me this morning he pressed his buzzer as he needed to go to the toilet . All the staff know the morphine at times gives him continence issues. On this occasion he was able to wait. Help came after 1 hour. My despair is that he was told you could have gone in the bed and we could have cleared it up. This is unbelievable no dignity and I’m genuinely shocked and I’m not easily fazed. They implied next time don’t worry go in the bed this is not with bed pan just on sheets.

I did speak to the sister on way out and she acknowledged they were so short staffed.
Didn’t go into all the details aside that he waited along time, I was too upset at the time.
Has anyone ever experienced this level of care !, he will actually be safer and better cared for at home.
Another time he was left on the toilet for about 45 minutes despite ringing bell and screaming out. This is someone who has no mobility and has lost use of hand !
Thanks for reading
ewww complain

Re: This is the reality for patients

Posted: Sat Jul 23, 2022 11:16 pm
by Breezey
That's a very distressing state for a patient to be in and loses confidence and trust in their care for them.
I had a similar situation when my mother was in a hospital last year, I was told "She's got a pad on' and given a shrug, so I challenged it about dignity, distress, trust in their care and then issues with it against the skin and this being basic care and preventative, the patient is frail and vulnerable, it is a delegation of duty of care and so on and do I need to take this to matron or sister to get her assistance. Visiting was 1 hour slots and I refused to leave until they had assisted her and cleaned her up because it had become too late and I needed to regain trust in them for her personal care. I was glad when she was discharged the next day and I hope she doesn't have to go back to that hospital and ward again, it was terrible, however, that could be the luck of the draw of who is on whatever shift and their staffing levels.

Aside from that, accidents happen, it happens all the time in hospital and it is just part of the job for staff, mortifying for the patient but for the staff it just goes with the territory, no judgement, no shock or disgust, it is one of those things. However if it is their neglect, it is a needless set of laundry to add to the laundry bill and takes up their time from doing other jobs, it beggars belief, but if they are short staffed and there are more pressing issues like changing drips, doing dressings etc they might not get there in time, it's horrible but it's how it is.

Re: This is the reality for patients

Posted: Sun Jul 24, 2022 6:08 am
by Alison_220212
This is awful. I heard it being discussed on Radio 4 recently, and I can't remember the suggestions, but the programme might be of interest:
https://www.bbc.co.uk/news/health-61826067.amp

Re: This is the reality for patients

Posted: Thu Jul 28, 2022 10:07 pm
by Ruth_181012
Thanks for the link
Past week there have been serious staffing shortages and didn’t have staff to get him hoisted into wheelchair for garden visit but we went into his room instead. Phones not answered ,feel for staff but feel it’s unsafe. Have alerted those in government dont suppose anything will be done

Re: This is the reality for patients

Posted: Thu Jul 28, 2022 11:29 pm
by thara_22071
Ruth_181012 wrote:
Thu Jul 28, 2022 10:07 pm
Thanks for the link
Past week there have been serious staffing shortages and didn’t have staff to get him hoisted into wheelchair for garden visit but we went into his room instead. Phones not answered ,feel for staff but feel it’s unsafe. Have alerted those in government dont suppose anything will be done
Maybe try a newspaper instead.

Re: This is the reality for patients

Posted: Fri Jul 29, 2022 9:43 am
by Henrys Cat
It is incredibly frustrating because you know that if they don't get there in time it will take 3 times as long & need more people to clean it up. It must be frustrating for them too as they will be the ones doing the clean up but it's so hard to get ahead of the curve. I'm so sorry that this is happening to him. They shouldn't be short staffed and patient safety is at risk in so many places. Just yesterday I arrived at the ward reception and could hear the buzzer going already, which I could see was for the bathroom / WC. After I'd finished it was still going and that was 10 minutes later. We know that people are suffering and even dying because of staff shortages but it doesn't affect those at the top & it's so complicated to actually address so they're not interested in dealing with it.

Re: This is the reality for patients

Posted: Fri Jul 29, 2022 1:31 pm
by Ruth_181012
Yes I agree it’s not possible to deal with the staffing .
But definitely in the 8 months he’s been in the levels have gone from worrying to unsafe.
I also agree that those at the top do not have the motivation to actually deal with the situation.
Most of my stress is to do with things not being done, kept telling staff I was concerned about the swelling in his arm , nothing done, now it’s a crisis after another dr was concerned and taking pin out next week. All the nurses kept telling me couldn’t get his pyjama sleeve on but to be fair dr wasent worried for the past month. But I’m not medically trained and I know something was wrong. It’s like no body actually has the time to speak to other teams and do what’s best for the patient.
I’ve been involved in all the times there has been lack of care even the Social Worker was visibly shocked when I told him the history, being sent home with unhealed broken humerus, and more recently surgery that the official line is could have been done better when all the surgery fell apart,plus non diagnosed snapped tendons.
I decided to speak to the gp as I’m worried about what to do when he’s home and we need to see gp. The only way my husband can travel is in an ambulance as he can’t get in a car. I told dr that the 2 times was told gp would do a home visit I was asked to drive him to A and E . And when he had a stroke was asked to take him from surgery to hospital. What would happen now and the response was that yes they do home visits but we can’t be a priority and would be assessed at time. He acknowledged long waits for ambulances. Bearing in mind when in hospital he needed to be transferred to another hospital ASAP and was a priority they couldn’t get an ambulance all night I’m not assured. I know I’m looking at what ifs but with his history I feel he should have a guarantee gp will come out but dr won’t do this. Nightmare .
Thanks for reading everything is worse with the current ongoing dire situation in NHS

Re: This is the reality for patients

Posted: Fri Jul 29, 2022 10:43 pm
by Ruth_181012
Have formally raised my concerns with health minister department .i do think they are fully aware of the dire situation from who I spoke to .