This is absoultely awful, personally I'm amazed your Mcmillan nurse hasn't done something about it, my Dad's had a lot of sway and got things organised for him.
I would phone them all EVERY day, in my experience it's those that do make a fuss that get things done - I learned this the hard way previously being nice and polite and not wanting to be a burden.
Very best wishes, hope you get some help very soon xxx