Hi folks, my husband has been out of hospital for almost 4 weeks after 43 weeks. We are both over the moon that he is home, he seems so much more content and settled.
I am struggling with carers in the house and extended family who have never visited previously, our home doesn’t feel like our own anymore in any shape or form
My hubby I don’t think doesn’t think the same way as me about all this he had a significant stroke during surgery for an acute aortic dissection and there is significant cognitive impairment, still him in lots of ways and not in many other ways.
I am struggling to sleep, hubby is completely disabled now and has a bedroom in what was the dining room, we have a monitor and I am just hyper vigilant listening for him all the time, he had a really bad seizure early hours of yesterday morning and following a really bad infection last week has been put on a palliative care plan now, which I know is the right thing.
Just feeling overwhelmed/out of control and just don’t know where to go for help, ultimately I don’t believe anyone can help right now
I really don’t mean to sound selfish so I hope that’s not how this message is interpreted
I am struggling with carers in the house and extended family who have never visited previously, our home doesn’t feel like our own anymore in any shape or form
I am struggling to sleep, hubby is completely disabled now and has a bedroom in what was the dining room, we have a monitor and I am just hyper vigilant listening for him all the time, he had a really bad seizure early hours of yesterday morning and following a really bad infection last week has been put on a palliative care plan now, which I know is the right thing.
Just feeling overwhelmed/out of control and just don’t know where to go for help, ultimately I don’t believe anyone can help right now