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Carers UK Forum • Sinking without trace...
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Sinking without trace...

Posted: Fri Apr 01, 2011 4:37 pm
by Ginnnyknit
I though at first maybe it was a sick April fools joke but no - I am no longer a carer and my Husbands benefits have been cut all in the stroke of a pen. He is now in bed, distraught and sick to his stomach. Yes ,they say he can barely walk but the 24 hour care I give him is not needed and all the help he needs is making a meal. Apart from being on suicide watch and lifting fetching and carrying him Im not needed. I cannot tell you how upset I am. Apparently I have to sign on. We had help from a very nice lady on the phone and have requested they reconsider the decision but it takes 11 weeks. Its not the money, its how the hell can I go to work whilst worrying all day and having had no sleep. Well yes it is the money too we are now in dire straits and are cancelling everything left right and centre. I really dont know what to do.

Re: Sinking without trace...

Posted: Fri Apr 01, 2011 6:54 pm
by Catja
(((Ginny and husband)))

I take it that your husband's care component of DLA has been busted down to low or none at all, hence the loss of Carer's Allowance. So bloomin' unfair - particularly as DLA at any level is hard enough to get in the first place. Image

Right, while the DWP takes its own sweet time reconsidering the decision, what you need to do is start preparing for taking this to an appeal tribunal - CAB or local disability rights place should be able to help you there. Also, try http://www.benefitsandwork.co.uk/ - there are parts of the site which are subscription only, but it's still a v useful site and IMHO the sub is well worth it.

BTW if you end up needing to appeal, insist on it being face to face (even if that means having a home visit) - there's a much higher rate of success than if the tribunal only sees the details on paper.

This is all one more thing you could do without, but hang on in there and good luck.

Re: Sinking without trace...

Posted: Fri Apr 01, 2011 7:26 pm
by Guest
I am so sorry, although this is not very helpful in dealing with the immediate shock and practical issues, as your husband was already on DLA on a particular rate of the care component, unless his condition has changed for the better, it is very likely that it will be reinstated at the previous level at appeal.

You say that you have asked for a reconsideration, have you also appealed, the two are different? You need to complete a GL24 and return it to the office which made the decision within one calender month of the date of the decision, do not wait for the result of the request for a reconsideration, you need to this now otherwise you will be out of time. I would also try to gather as much evidence as you can in support of your appeal and do get yourselves a welfare rights advisor to help you.

You can find information and a downloadable GL24 leaflet and appeal form here:


Good luck.

Re: Sinking without trace...

Posted: Fri Apr 01, 2011 9:40 pm
by Ginnnyknit
Thank you all for your support, I don't often post on here but I do pop in every week to keep myself upto date.

Re: Sinking without trace...

Posted: Fri Apr 01, 2011 10:57 pm
by Sianie87
i am so sorry that this has happened. this is what i am sooooooooo worried about with my mum when hers is due for renewal in august. bebefits and work are quite good so do take alook and if yo can afford their fee you can post like yo do on here for help as well. good luck and keep going. i know its hard but these days we have to fight. so b****y unfair Image

Re: Sinking without trace...

Posted: Sat Apr 02, 2011 9:53 am
by SezzieC

I am so sorry to hear this has all happened Sweetheart.

As hard as it is (and believe me, I know how hard it is because I am doing battle with the Civil Service at the moment but I have now made a formal complaint), you've got to find the energy to fight, no matter how frightening it all is, no matter what other problems you have to contend with.

You feel sick to the pit of your stomach, can't sleep. Don't let them beat you though.

Take the very sagely advice of our friends on here. I have got the support of a very good Welfare Rights adviser from our local CAB who is coming out to see us next week.

Contact your local councillor, MP. If necessary, consider going to the Press.

If you contact your MP and they don't respond because they happen to be of either political ilk that is supposed to be running this country at the minute, then go to the Press about their failure to get back to you on the matter. They're not mad keen on bad publicity. (I'm a former Local Government Officer - I know what I'm talking about).

Surround yourself with a good support network. You feel you're not going to be helped but believe me, once I started telling folks what has been happening with us, the amount of help I've been getting has been tremendously positive.

And keep talking to us. Keep on talking to us. We'll help you every step of the way.


Re: Sinking without trace...

Posted: Sat Apr 02, 2011 10:53 am
by Nilla
Oh Ginny thats awful! This government have a lot to answer for havent they? they stop benefits for the vulnerable but yet throw money at people who dont need it!

You really will have to appeal this, I feel for you I really do x

times are changing.

Posted: Sun Apr 03, 2011 1:09 pm
by Maxi
we are in the midst of a massive change in the benefits system and this is a time of very great uncertainty,fear,concern,and hardship for all on state benefits of any sort.

pentioners,carers,disabled folks,everyone depending on any sort of state aid is really vulnerble right now.
DWP is understaffed,and has a massive workload.

I think many,many people will suffer and struggle and will fear the future right now.

theres a basic problem.Carers are guilty untill proven innocent.

Instead of the fact you ARE a carer being the starting point,carers have to justify,prove they do the role they do for the hours they do it.Their carees have to deliver that same degree of proof.

carers not only struggle each and every day,they must prove they do.

Re: Sinking without trace...

Posted: Mon Apr 04, 2011 11:04 am
by carer2k11
Hey, firstly, dont worry. We were there a few year's ago, my mums DLA was all stopped after 15 years or so. She went to tribuneral and won her case. It all came down to a doctor who had issues with people on benefit's who did he assesment first time round.

Citizens advice were a great help i have to admit, i remember going to the job centre to sign on for job seekers and they said what hours could i work, i told them and they said well you cant work, i said no, they said cant sign on then, they said i was a carer but wouldnt give me the money due to the DLA situation, that night the emergency credit on the meter's ran out and we just sobbed.

Dont give in trust me, you will get there in the end. Good advice re: face to face tribuneral, it sounds like the only way to get thing's sorted.

I wish you all the best.

Re: Sinking without trace...

Posted: Mon Apr 04, 2011 11:12 am
by Chinarosie

Just wanted to add that I have recently been through something similar despite providing additional information for our daughter's DLA renewal. My daughter is deaf with additional needs and when my husband telephoned the DWP stating our daughter doesn't sleep through the night and the the reasons why, the woman on the other end of the line, stated ' that our daughter would not wake during the night because she is deaf and cant hear noises.

Anyway, we contacted our local welfare rights team who wrote a letter. To be honest I had convinced myself that we would have to go to appeal. But on Friday we have our decision, the DWP admitted it got it wrong. Like you I had worried etc but there we had the decision and it had not taken the full 11 weeks.

Take care