My mum was seriously disabled, often in hospital. I'm the nearest relative, constantly frustrated by the lack of co operation. It's OK if I agree with everything that's going on, but as soon as I say something won't work, isn't appropriate, the staff concerned develop instant selective deafness. Mum's care has involved two different areas, south east and south west England, as she lives right on the border. The hospitals can't/won't speak to each other, so I was the only person who knew mum's medical history, but no one wanted to listen. There are already written policies for carers for hospitals, I'm sure CUK have one for you to copy, but I doubt anyone will listen to you or take notice of it I'm afraid. On one occasion a hospital was going to discharge mum from a carpal tunnel op with no arrangements for her after care. Is it so difficult for them to realise that someone using a zimmer frame couldn't use it if their arm was in a sling!?!? On another occasion, the hospital were insistent that mum was fit for discharge, when she clearly wasn't. They sent a hospital bed to mum's house. I didn't go round to let it in. When asked why? I said she's not for discharge. I was then told that they knew mum had a key to her home in her purse. If necessary, they'd let the bed, and mum in, themselves. In response, I said they didn't know mum had an inner and outer front door. She only had a key to the outer door, and I'd make certain the inner door was locked at all times from then on. Days later, mum was vomiting blood, and after further complications, never went home again before she died. I knew my mum better than anyone else. Why wouldn't anyone listen to me? Sometimes, I think my middle names should be "Attila the Hun" but why should I have to keep fighting? As an over 60 carer, I wasn't even entitled to Carers Allowance!