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No CPN and why? help
Posted: Wed Nov 19, 2008 9:46 am
Because of some problems with a new team taking over my husbands care [long story] we asked for a new CPN [community phsychiatric nurse who comes fortnightly to administer his injection and supports him] and a new consultant, no matter how we tried, we couldn't get along with him or understand him.
We seem to now be penalized, they cannot find a CPN [they have had 6 weeks so far] and they want to pass this over to a Occupational therapist, which they say have the same qualifications as a CPN, however, they cannot give my husband his injection!!!!!! so they suggest that this OT take my husband to the GP surgery every 2 weeks to do this!!!!!! he is in a right state, and hes worried, for almost 28 yrs hes had a CPN and this is what hes used to.
So what I have done so far is cancell any appointments they have priorily made and want to seek any assistance from our GP as I feel my husband is entitled to a CPN as care in the Community this has brought on more strain, more worry, any suggestions?
this whole situation
Posted: Wed Nov 19, 2008 7:23 pm
this whole situation has got totally out of hand,
we have had to do without a cpn for 6 months due to the new changes,
I do not know if it is the same everywhere with these new rules,
but round my way the cpns are now organised by being attached to gp surgeries, if you go to you`re GP and ask for a new referal, this is what we have been we will have to do,
as now cpns will have a plan to work to work to when that is reached, the patient will be discharged, and when help needed again you have to go to gp and get a new refferal.
Thank you. Maybe that is
Posted: Thu Nov 20, 2008 2:09 am
Thank you. Maybe that is what they are aiming for. Hes been unwell, and been in hospital, theres been a bit of a 'to do' as his new CPN was not treating me with any respect whatsoever yet I was good enough to come into play when she needed me......my husband and I want a support team around us that understand and listen, not one who ignores the carer.
So maybe I am doing the right thing in getting my GP involved? is that how this new system is working then? as they wanted to get an OT to come out who isnt qualified to give him his fortnightly injection and take him the surgery to have it and then back home again, whats the use of that!!!!!!! I can do that!
Sue- I can only say
Posted: Thu Nov 20, 2008 9:38 am
Sue- I can only say that if he is now under an new team not just a CPN then check it is not assertive outreach team- they are made up of a variety of professionals including OT, CPN and HCA's and lead by a pychiatrist.
I know it feels wrong to you but if this is what is now happening then they should have chatted this over with you and discussed how its going to be- from my experience I was so angry with care in community ( and stillam a lot of the time!) until they did try to explain what they were doing...when you are in and out of hospital with severe illnness you kinda get used to people doing things to you and givin you drugs and telling you when you can have leave etc..these new teams are supposed to work with the person to help them do what others do- take a role in their lives and not have service come to them when well. I know this may seem wrong when some one is just out of hosptal - but I also feel and have seen that when you come home if you have no reason to get up and go out cos you dont work then one day kinda rolls into another and for bipolar having no routine is a really bad news -gently going out on a regular basis with some one to somewhere routinely gives you a break and helps them get ready on that day and go out in teh real world . I am not sure if I have explained this well and I find it hard to deal with myself as the professionals tell me I have to let them take control of the illness and not do if for them- its quite hard to do when they get so very very ill. I am glad however that you are able to be out of hospital--I am hopeful we will home by xmas perhaps but only getting walks in the hospital grounds at present.
Posted: Fri Nov 21, 2008 12:13 am
I had the same trouble myself when my husbands CPN said he was being moved onto the South Team & we were staying on the West Team, which meant being without a CPN until they were ready to find a replacement.
Well I didn't think that was good enough so I rang the managers on the South Team & complained then I rang the managers on the West Team & complained & I also spoke to the Pychiatrist secretary who said she would pass on my concerns & he would bring them up with the CPN's managers.
Before the end of the week was out we had received a phone call telling us who our new CPN was going to be & when they would be doing the hand over. So all I can say Sue is don't let up. I kept on at them all the time but if you don't feel you have the strength I would ring the carers for advise & help.
Take care Deb x
Thank you both of you
Posted: Sun Nov 23, 2008 12:42 am
Thank you both of you
I had a very very long discussion with my GP she says, its not good enough for my husband to be told to come to the surgery for his 2 weekly injection and that he needs....yes NEEDS a CPN for phsychiartry purposes! so it looks like she is taking some of it on for me and I contacted our MP as we had problems when he was in hospital without conversations taking place BEFORE treatment of my husband, and I am his primary carer I feel I should be more involved, yes I am emotionally warn out, but I wont shut up LOL
Sue, the only way you
Posted: Sun Nov 23, 2008 5:25 am
Sue, the only way you should be left out of any discussions over your husband's health or treatment is if he requests it. Conversely, all he has to do is ask and you MUST be included in planning, etc.
A quick google for the Mental Health National Service Framework should give you what you need to remind them. It's only been in place for almost 10 years now...