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Carers UK Forum • NHS CHC on Facebook
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NHS CHC on Facebook

Posted: Sun May 15, 2022 5:46 pm
by butterfly68
Been umming and ahhing whether to go on Facebook. Anybody on Facebook?

Just came across https://www.facebook.com/groups/241799995867413/, it's Facebook's Continuing HealthCare (CHC);

About this group

This is a space to create debate around CHC. Many many with high care needs are being turned down the opportunity to gain access to NHS funded Continuing HealthCare, putting pressure on the future of their independence. The current economic conditions in the UK are putting more pressure on these VERY important and much appreciated care packages. People with spinal cord injuries are very much affected by this situation, so debate, experiences and solutions to encourage CHC for those who REALLY need it, would be most appreciated.


Also came across the following online info;

Relatives & Residents Association

We support, inform and speak on behalf of older people in care

http://www.relres.org/

Re: NHS CHC on Facebook

Posted: Sun May 15, 2022 8:04 pm
by Breezey
Just give them a go.
It could be just what you need, or not!
If you don't like the FB group then leave it.
If you don't like FB delete your account.

Re: NHS CHC on Facebook

Posted: Sun May 15, 2022 8:16 pm
by butterfly68
Breezey wrote:
Sun May 15, 2022 8:04 pm
Just give them a go.
It could be just what you need, or not!
If you don't like the FB group then leave it.
If you don't like FB delete your account.
I've done a lot of research about how to use/set up Facebook, not that simple.

Re: NHS CHC on Facebook

Posted: Sun May 15, 2022 10:14 pm
by bowlingbun
If you can use this forum, you can use Facebook. My son with learning difficulties has a Facebook account. He can't read, write, or do any maths but we can send him pictures, messages he can hopefully ask his staff to read to him etc. I keep in touch with friends who I meet in Crete, scattered around the world, etc, etc. I never say when I am going away on the main site. I can send photos to friends. Wonderful to be able to keep in touch during lockdown.

Re: NHS CHC on Facebook

Posted: Sun May 15, 2022 10:16 pm
by Breezey
Breezey wrote:
Sun May 15, 2022 8:04 pm

I've done a lot of research about how to use/set up Facebook, not that simple.
It's a bit longer process than registering on here as a member because there are more options.

Just follow the FB step by step process to set up the account and their privacy options which they have made easy to do. You don't have to put any personal details in there eg job, hobbies etc - all of those are optional.

If you have a trusted friend who is savvy with FB you could ask them to help you set up your account and privacy.

Re: NHS CHC on Facebook

Posted: Sun May 15, 2022 10:17 pm
by butterfly68
bowlingbun wrote:
Sun May 15, 2022 10:14 pm
If you can use this forum, you can use Facebook. My son with learning difficulties has a Facebook account. He can't read, write, or do any maths but we can send him pictures, messages he can hopefully ask his staff to read to him etc. I keep in touch with friends who I meet in Crete, scattered around the world, etc, etc. I never say when I am going away on the main site. I can send photos to friends. Wonderful to be able to keep in touch during lockdown.
I've done research in using an alias name as don't want to use my actual name, doesn't seem possible.

Re: NHS CHC on Facebook

Posted: Sun May 15, 2022 10:38 pm
by bowlingbun
That's a different issue!
I seldom comment on the CUK group because I can't be anonymous.

Re: NHS CHC on Facebook

Posted: Sun May 15, 2022 11:58 pm
by Breezey
butterfly68 wrote:
Sun May 15, 2022 10:17 pm

I've done research in using an alias name as don't want to use my actual name, doesn't seem possible.
Having an alias is an entirely different matter, from your post and replies it seemed that you were talking about the actual registering process to FB and not setting up an alias.

Alias names are not allowed on FB, it's a way of guarding against abusive use of FB and members.
Anyone with dubious names/aliases can be reported and deleted.

You can set tight privacy and you can join that group and just 'lurk' in there i.e view and not post, if the group is public you don't need to join it if you only want to lurk.

Re: NHS CHC on Facebook

Posted: Sun May 22, 2022 8:53 pm
by Henrys Cat
You can use a fake name instead of an alias if you just want to use specific groups. I know a few social workers and teachers who can't put their full real name on for security purposes and they just use their first name (Like Sarah Jayne).

Re: NHS CHC on Facebook

Posted: Sun May 22, 2022 9:46 pm
by butterfly68
Henrys Cat wrote:
Sun May 22, 2022 8:53 pm
You can use a fake name instead of an alias if you just want to use specific groups. I know a few social workers and teachers who can't put their full real name on for security purposes and they just use their first name (Like Sarah Jayne).
I've done some research and it sounds like you'd get pulled up using a fake name. Not sure what to think, as my friend has been banned from Facebook for using her real name as Facebook claim it's a common name.