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need help incontinence and use of nebuliser by care tem - Carers UK Forum

need help incontinence and use of nebuliser by care tem

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hi my mum who is 67 is bed ridden with last stage emphysema she is lives on her own is on an oxygen machine and has a care team that go up half hour morning and half hour in evening and i go up an do things for her every day.sorry if this is a long one but dont know where to turn, since her last time in hospital[january] she has become incontinent and is unable to get to her commode, district nurse fitted cafater but it was to painful so was taken out, she has to take her nebuliser 4 times a day, now the problems start cause in bed constantly she loses track of time and forgets nebuliser, her care team are not allowed to administer it, she is not allowed pads 4 bed cause she is not in palative care and cause of cutbacks she has a new care team so trying to get used to them she does not like personal care alot from them, she only gets a visit of the natron once a month no doctor contact and when i brought this up with the social services care lady i am getting no help but they are refering her to mental health cause she is a danger to herself ,this is stupid all she needs is help with incontinence and help with her nebuliser so confused any advice x
Hi Lorraine, can I suggest you Google "NHS Continuing Healthcare Checklist"? It's difficult to qualify in some areas, easier in others, start with looking at the checklist and if in doubt, ask your GP to arrange for an official assessment. Can you remember a checklist being completed before mum's last discharge - it should have been done with your involvement. It might be worth writing to the hospital and asking for a copy. I have a sneaky feeling they might not have done it?! If not, contact the PALS department at the hospital (Patient Liason). Your mum's care sounds hopelessly uncoordinated, so frustrating. Sadly though, it seems to happen very regularly. I got so fed up with my mum having bad discharges I refused absolutely to agree to her discharge back home (mum accepted it was no longer safe). After 5 months mum moved into a good nursing home where she spent the rest of her life. There comes a time when people genuinely need 24/7 nursing care. Lots of us have been involved with elderly parents in and out of hospital, feel free to ask about anything.
thankyou so much for your reply, i lost patience in the end and phoned the district matron i was not happy , she is now going to try and get mum some adult nappies and they will be delivered she is also said why cant i show the care team how to administer her nebuliser i explained that it has to be someone medical that shows them, which after lots of me moaning she has agreed to do but not sure when, as these were my main two problems with any luck some of it sorted now to just wait and see why we are being referred to mental health as our only problems were that and mum feeling like she has lost her dignity and does not always like personal care and them washing her as she finds it embarrassing and cause its a new care team it will take her a while to let them do certain things Lorraine
Good to hear some progress is being made. The care manager would be leaving herself wide open to a negligence claim if she didn't ensure her staff were fully trained by a properly qualified person. This should have been done before any care was provided!
thankyou 4 your comments meetings got done without me knowing and everything i had said got twisted they are saying i have said she refuses to take medication when i have never said that i have always said she forgets 2 take it , district matron is a cow <sorrry> but of no help all these people making decisions about mum and they dont know her and they are saying she is self harming herself, but the physiatrist they sent has diagnosed her with vascular dimentiia ,which just proves all i said about forgetting things, they are having another meeting Monday which i will attend, i cannot believe how difficult it is just 2 get a small amount of help x
Lorraine Black wrote:thankyou 4 your comments meetings got done without me knowing and everything i had said got twisted they are saying i have said she refuses to take medication when i have never said that i have always said she forgets 2 take it , district matron is a cow <sorrry> but of no help all these people making decisions about mum and they dont know her and they are saying she is self harming herself, but the physiatrist they sent has diagnosed her with vascular dimentiia ,which just proves all i said about forgetting things, they are having another meeting Monday which i will attend, i cannot believe how difficult it is just 2 get a small amount of help x
Hello Lorraine,

What you have to remember is that the first priority for a lot of these people is their job preservation which is why they're so adept at ducking & diving.
Hi Lorraine, I have had various problems in the past. If they are not listening, then write your own report for the meeting, saying by the end of the meeting I want this this and this agreed, with an agreed date for completion. even write your own agenda. Do a copy for everyone attending. Then keep referring them back to what you have written. You are the carer and they are supposed to be helping and supporting YOU in your caring role. Just keep reminding them of this. Without you, residential care would probably be the only option. Go to the meeting in plenty of time, dress smartly, etc. Don't panic, take deep breaths. If they don't seem to be listening, tell them. If they are ignoring you, ask why? This will not be what they are expecting, it's a hugely effective way of getting what you want. Make it clear that if they still don't do what you want, a formal complaint to the Director of Social Services will follow! Good luck.
Hi yes thanks everyone the meeting went ok I went armed with notes and got my opinion over the physiatrist helped ad he has said she has vascular dementia so her memory is bad and will not get better, district nurse argued the fact that mum only needs 2 take her nebuliser when needed so I pointed out that when she got discharged from hospital in January it was said she should be on nebuliser 4 times s day in fact they even did it so one of her inhalers was put into the nebuliser with the salbutamol to save her doing to many different ones, so if she only did it when needed she would be going without certain medicines also a doctor has not been to see her since she left hospital so they should not be changing her medication and I have not heard this is the case not sure if she has that from her old notes I am keeping to what the hospital and specialist have said until I visit her doctor , we got nowhere with the incontinence so will be buying some Kylie bed sheets , the care manager and everyone were lovely and helpful just seemed the district nurse was the one not helping with anything and tutting a lot she even left half way into meeting , but everyone else's comment were good and helpful, just a shame the nurse who sees mum once a month was almost giving up with trying to help x
Might be worth having a word with the DN's manager? Overall though, it sounds as though you got things across very well.
cheers for the reply thought it was all ok , but district nurse has done nothing i have gone and got kylie bed pads spoke 2 doctor who changed mums pain killers but when i said about her nebuliser his reply was u want me 2 make it 4 times a day which i just sat there and felt deflated and said it is not me it was the hospital and specialist that said that and u have not seen her 4 years so give up with it all will deal with it myself cause there is no help out there x