
We have a 20 yr old daughter with severe cebral palsey qaudraparaplegia , she has learning difficulties and speech problems, she needs total care and we have done this gladly since we adopted her when she was 9 months old.
We have in that time only had 3 weeks holiday from our caring role in the time we have looked after her and the first time we went away for a weeks break was in 2005 so we did an 18 yr stint with no respite .
In 2006 we contacted adult services and asked for an assesment of our daughters care needs and an assesment of our needs as carers.
Our daughters was done and a package of 10 hrs per week for personal care was put forward in the form of direct payments , our assesment has never been done.
We fought as usual to get our daughter a place at yeovil collegewho have a special needs learning unit . this was the begining of our nightmare.
On the 19/03/07 at 7.45 am we put our daughter on the transport to college, we said bye have a good time see you later, she replied with yeah one of the few words she can say.
That to this day is the last time to this day that we have seen her spoke to her.
We received a knock at the door from adult care manager at 5 oclock that evening and said , your daughter does not want to live here anymore ,no contact not to know where she is .these are her wishes.
We were in total shock ,we still canot beleive that this is our daughter would want this as we are the only family she has got.
Our autistic son whom is 18 yrs old and goes to the same college(we adopted him when he was 5yrs old) came home when they had gone and said , i could not tell you about meetings at college ,tutor told me if i told you i would be taken away and i heard tutor tell sis that mum rang and said she didnt want to come to meetings as she did not want to care for you anymore.
Apparently they had meetings at college since feb and our autistic son was placed in meetings to represent the family.
There is a lot more that he has told us but our daughter is out there somewhere thinking we dont want her anymore , has anyone any ideas we were told we have no rights.
jon