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Leaving work to care for wife - Carers UK Forum

Leaving work to care for wife

Share information, support and advice on all aspects of caring.
Hi everyone, I'm new here so forgive any mistakes, basically my wife has Epstein Barr virus in her system and it has caused her to develop cfs/ fibromyalgia , anyway coincidental as it may seem ever since she has had the first Coivid jab her condition has worsened ,but i n any case she needs round the clock care because of other issues , my question is how easy or difficult is it to leave work to be a full time carer, cash flow , help, support etc ,thanks ,sorry for waffling but I am getting really stressed about the decision to leave work
Don't do it, until you have explored every other option!
Has your wife had a Needs Assessment from Social Services?
Claimed Attendance Allowance?
How old are you both.
Do you rent, or have a mortgage?
Stay at work and get help for your wife. There are many solutions available if you like your job. That job maybe your saving grace.

https://www.welcometothejungle.com/en/a ... time-carer

https://www.theguardian.com/money/2020/ ... loved-ones

http://www.carersuk.org/images/News_and ... al_WEB.pdf
Thanks bowlingbun, we are both 63 and have a mortgage, my wife has been assessed and various pieces of equipment installed however the main problem is she cannot get herself on to the toilet and the carers won't help her without a sling affair which will not fit in our downstairs toilet ,so i am having to come out of work during the day to attend to her hence the question of leaving work
There are solutions.
Has an Occupational Therapist assessed the situation?
In the meantime, a caravan Ports Lotti with a toilet frame elsewhere I the house?
How will you pay the mortgage? Carers Allowance is around £60 a week!
Ask Social Services to do a Needs Assessment for your wife, arrange an Occupational Therapist assessment, and a Carers Assessment for you, URGENTLY.
They are supposed to help carers stay in work. They might even adapt the house.
What is the nature of her disability?
Russell_2104 wrote:
Wed Apr 14, 2021 7:10 am
.................... the main problem is she cannot get herself on to the toilet and the carers won't help her without a sling affair which will not fit in our downstairs toilet
A Commode is required in this situation, (plus hoist and sling).

OT will provide all that.
The more you lift your wife the higher the risk of an accident. And both of you end up injured. Ask for an urgent O/T assessment. You can do a self referral for your wife you don't have to wait.

As you are near to pension age. It's important to check out how you pensions will be effected. If you leave employment so close to retirement date.

Do you actually want to leave your employment.
Hello Russell and welcome to the forum.

Sorry to hear about your situation, it can be really difficult to make decisions regarding working and caring. You might be helpful to look through our Help and Advice pages and see what support is available to you, there is also a section on working carers. Have a look here:

https://www.carersuk.org/help-and-advice

Best wishes

Jane
Russell_2104 wrote:
Tue Apr 13, 2021 7:49 pm
Hi everyone, I'm new here so forgive any mistakes, basically my wife has Epstein Barr virus in her system and it has caused her to develop cfs/ fibromyalgia , anyway coincidental as it may seem ever since she has had the first Coivid jab her condition has worsened ,but i n any case she needs round the clock care because of other issues , my question is how easy or difficult is it to leave work to be a full time carer, cash flow , help, support etc ,thanks ,sorry for waffling but I am getting really stressed about the decision to leave work
Hi Russell,

The advice from others here is probably best in your situation but there is also another option - you could request a sabbatical from work where you take a period of time off unpaid but keep your job and continuity of employment, I've just started caring for mum full time and have been granted a year sabbatical from work, and they have indicated they'd consider extending if necessary.

If nothing else, a sabbatical gives you breathing space to make decisions in a less pressured way. While unpaid I am entitled to carer's allowance and mum gets the higher rate of attendance allowance, which I would think your wife will get too. I used an independent agent (at a cost of £35) to do the forms and make my applications for the allowances, which also helped as I was overwhelmed at first.

Very best of luck with everything.
Jean are you able to expand on this ...It may well help others
I used an independent agent