Incontinence Pads on the NHS - Help

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It may well be different for men and women. In our case it was not urinary incontinence because my brother used a Conveen. It was also not the quality of the pads but the size - he needed extra large ones. It took over a year to even locate a continence nurse - I only found one because a neighbour across the road had worked for them in the past. The GP was very helpful and gave us whatever we wanted. I was certainly convinced that we had the largest pads the NHS supplied. I cannot say if it was a postcode lottery - we weren't going to move. At least our borough provided CHC!
Oh gosh, I had a much better experience than anyone on this thread. I seem to remember that I contacted a continence nurse myself. Mum was supplied with ‘panties’ for a while but eventually had ‘tenna’ large size full capacity continence pads which ‘velcroed’ around her waist. She was supplied with 4 a day, on prescription, delivered in boxes with 3 month’s supply a time. Worked fine.
My only concern was that when she died the remaining boxes couldn’t be returned because ‘it cost more to return than to supply’ ??
I gave the boxes to Mum’s care team to hand out to other needy persons. Wondered how many were ‘tipped’ by grieving relatives with that no return policy.
I'm going back a few years here but perhaps a continence nurse has more to offer when it comes to pads than a district nurse?
The DNs who attended my mum came to dress a wound on her leg when she drove he chair into a table and a boil on her back which she had to have seen to in hospital but the OT and CN I found for myself.
I also recommend that people search their LA web site, Dig deep because there may be more on offer than is widely publicised.
Stephen_16071 wrote:
Fri Jun 14, 2019 11:54 pm
Mum has been paying for her own pads for three months now, I think the point is, she shouldn't be!

Mum is self funding with regards to her care, whereas if she'd been holidaying in Benidorm wasting her money, she would get funding for her care. It's the same old tale, those who save get squeezed of every penny, the frivolous have everything free with care funded by the NHS.

In that context, I don't think Mum should be denied £50 worth of pads a month while others get the pads and thousands in care fees paid.

I phoned the District Nurses on Monday, only to be promised a phone call back. Shock horror, Friday comes and goes, nothing.

I'm at my wits end and close to making a formal complaint about the Nurse who has been out twice and not lifted a finger to help Mum..
Stephen, I'd be the first to agree you should complain here.
Stephen_16071 wrote:
Sat Jun 15, 2019 11:53 pm
Greta, if I'd took your advice Mum would be paying for her own pads until she died.

You are so wrong, different pads are available, but of course the Nurse is going to fob you of with the cheapest available, if you accept it, which you obviously did.

One of Mum's carers told the District Nurse the pads weren't fit for children, she didn't like it. But at least it sank in and she asked what we wanted...
I would re-iterate though Stephen that the DN can only give you what he/she is allowed to give. Its not up to them at all.

The DN doesn't care about costs. They gain nothing by giving you the cheap ones and keeping the better ones. In fact, they'd prefer everyone was happy. The management, on the other hand, not so...
It's a week later since I was promised a call back from the DN i spoke to and still nothing.

WHY PROMISE TO CALL YOU BACK, when you have no intention of doing so?

In the meantime, I've paid another £22 for Mums pads to last another two weeks.

From now on I'm going to take names and shame and complain about every single District Nurse who doesn't keep their word...
Lie to me once, shame on me. Lie to me twice shame on you. Lie to me twenty three times, you are a complete basket case .

District Nurses have lied to me on twenty three times...Shame on them. I hope they sleep well at night.
I don't usually get much trouble with the continence team,

Though I do emphasise the risks of not having an appropriate product to suit their needs, and that I will without no doubt whatsoever (no damns given) hold their team or the person making that decision fully accountable on grounds of negligence if a caree that relies on the product is messed about or is not provided them.

I make it clear its nothing personal, I do respect the job they do, however they would not stand for their loved ones or people they care about swimming in poo or wee, so don't expect me to feel enthusiastic about the idea either.

I'm sure one day if I get to be old this stance will backfire, but as much as its a case of caring very much for those I look after, I am also legally responsible for their health and well-being, just like anybody else.. at the end of the day this is a 9 to 5 job for the majority of them but I do it all year round, they don't like it tough, they should grow a thick skin as most of us have to.

And honestly.. its in their interest to just provide the product needed, its a hell of alot cheaper for the health service than £1000's on treating life threatening infections/wounds which occur through improper products being used.
Honey Badger wrote:
Wed Jun 26, 2019 2:05 am
I don't usually get much trouble with the continence team,

Though I do emphasise the risks of not having an appropriate product to suit their needs, and that I will without no doubt whatsoever (no damns given) hold their team or the person making that decision fully accountable on grounds of negligence if a caree that relies on the product is messed about or is not provided them.

I make it clear its nothing personal, I do respect the job they do, however they would not stand for their loved ones or people they care about swimming in poo or wee, so don't expect me to feel enthusiastic about the idea either.

I'm sure one day if I get to be old this stance will backfire, but as much as its a case of caring very much for those I look after, I am also legally responsible for their health and well-being, just like anybody else.. at the end of the day this is a 9 to 5 job for the majority of them but I do it all year round, they don't like it tough, they should grow a thick skin as most of us have to.

And honestly.. its in their interest to just provide the product needed, its a hell of alot cheaper for the health service than £1000's on treating life threatening infections/wounds which occur through improper products being used.
Spot on... There are a lot of lazy people who work for the NHS - Stephen has met a lot of them it seems.

I'd say you have every right to do this. The medical professional should be doing what they can. As I've mentioned before, there are limits to what they are allowed,but if they can justify their decisions then thats fine. I'd do the same.
I've met one useless Nurse, Paul, the supplier of inadequate pads until I complained, the same DN turned up a week late and asked what Mum needed. .Then promised certain things six weeks ago which haven't transpired..

Our Carers said the pads weren't fit for children, I'm now paying £21 a week for this useless Woman's negligence.

Were about to run out of the "Night time" pads which we use for the 2 hours between tea and night call.

Why promise something you can't keep. I'm going to do my best to have this DN fired....She is unfit for purpose.
Stephen_16071 wrote:
Thu Jun 27, 2019 12:37 am
I've met one useless Nurse, Paul, the supplier of inadequate pads until I complained, the same DN turned up a week late and asked what Mum needed. .Then promised certain things six weeks ago which haven't transpired..

Our Carers said the pads weren't fit for children, I'm now paying £21 a week for this useless Woman's negligence.

Were about to run out of the "Night time" pads which we use for the 2 hours between tea and night call.

Why promise something you can't keep. I'm going to do my best to have this DN fired....She is unfit for purpose.
Stephen - I think you're right to complain to at least get the best you can get. As I said before though, scheduling etc is not really up to the individual DN - theres a chance this got passed to someone else who decided they couldn't spare the DN for a week, and/or someone else hasn't sorted supplies in those 6 weeks.

Honestly though - find out whats going on first and get the situation sorted.