I totally agree with you George that carers should be paid a proper wage not just a subsistence level allowance and that our economic contribution to society should be recognised financially and not just with a few patronising pats on the back.
By working part time i have £35 a more and that little bit extra makes a difference to our lives not least because i can turn the central heating on without worrying about whether i can afford to pay the bill. So to a certain extent i do not choose to work and care it is just that as carers allowance and supporting benefits are so low my financial circumstances make it necessary.
HOWEVER i do think carers should have the choice to take up paid employment if they wish to. The word here is CHOICE. No one should be expected to care for more than 35 hours a week and have to take up paid work as well. I strongly believe that caring is work. But caring can be stressful and socially isolating and some carers given the option would choose to work. I work partly from home but when i go into the office it opens up a world other than caring. My husband also enjoys going out with a community support worker for a couple of hours twice a week. As he is usually surrounded by women he welcomes the opportunity to have a chat with other blokes about sport (which I hate) and music (as blokes do). These short breaks add to the quality of both our lives.
I have been caring 24/7 for my husband since we were both in our twenties. We are now in our forties. The only rights any of us have are those we can exercise by force or those which society bestows on us. But personally i would like to live in a society that does what it can to support and give quality to the lives of all its citizens. Few of us really choose to be carers. We just happen to love people who through no fault of their own need support in order to live. I love my husband very much, i wouldn't be without him and would if it came to it lay down my life for him but it doesn't mean i don't need a few hours to myself sometimes. And I think that that is ok. It doesn't make me selfish or a bad person just human.
If my caring role was not so full time and so stressful or if there was more high quality support available that was affordable i might well choose to work part time. My job can be quite interesting and i really believe that a few hours a week of high quality respite adds to the quality of both our lives. Not every carer and caree would agree and they should also have the choice not to use respite or to take up paid work. We are all different and those differences should be respected and supported. As it is i feel that i am trying to combine working and caring with inadequate support and very little financial reward and the stress of this outweighs the benefits of working.
Campaign for a Real Choice for Carers
Belle