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Father welcomes inquiry into son's death - Carers UK Forum

Father welcomes inquiry into son's death

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04 June 2007 09:08

A Norfolk father who believes his son's death was caused by institutional discrimination within the NHS has welcomed the news that an independent inquiry will scrutinise the case.

Charity Mencap took up the cases of six deaths, including that of Mark Cannon, who died eight-and-a-half-weeks after being admitted to hospital with a broken thigh bone.

His father Allan, from Barton Turf, has been campaigning to raise awareness of the ingrained discrimination he claims to have encountered from NHS staff towards his son, who had severe learning difficulties and could manage very little speech.

The Department of Health has announced that Sir Jonathan Michael, former chief executive of Guy's and St Thomas' NHS Foundation Trust, will chair an inquiry into access to healthcare for people with learning disabilities, using the six cases.

Mr Cannon, 59, said he was particularly pleased with the news that the Health Service Ombudsman for England, Ann Abraham, will also be carrying out her own independent investigation of the cases. He said: “With the ombudsmen also agreeing to investigate each case we hope that there will be some accountability for my son's death.

“The health service investigation will also benefit everyone who has a learning disability. My son died at 30 years old and all of his life was a fight to get him the care he deserved.

“For people with learning disabilities hospitals are very dangerous places at the moment.â€Â
Wendy, thank you for bringing this to the forum. I've heard some real horror stories about this kind of thing - especially in accident and emergency hospitals, but also in general medical/surgical wards.
Thanks Charles.
I must admit I did think hard before I posted it.
I hoped that I had done the right thing.
It broke my heart to read it.
that is why l always insist on staying with my daughter when she is in hospital and l always ask them to forget about her disabilities when asking about other symptoms as l think they tend to overlook everything else and put everything down to their disability when that is not always the case l know staying in hospital is not always possible for some people as they have other family at home reading these stories just proves to me that l am right in pushing for a diagnosis even if doctors look at me as if you dont know what you are talking about l nursed for 15yrs before l had my daughter and l do know what lm talking about as her mother l know her better than any doctor
Hospitals today are dangerous places for ANY adult who for what ever reason, can't fend for them selves---
They don't get pain relief because they don't ask for it-- they don't get catheters changed or unblocked-because they don't tell them that the bed's wet through.
They just get left in a corner bed and nobody ever thinks that maybe they CAN'T ask for things.

My wife went in for a simple procedure and if I had not gone in every day and did the personal care as I would at home I am convinced she would have come out in a box.
After a three week stay she came home with many more problems than she went in with and it took seven months to get her back to "NORMAL"
I'm with you all the way on this one. both my mother and my Aunt suffered appalling neglect in our local hospital last year, Mum because she was too confused and ill to say anything, Aunt because she doesn't asseert herself and ask for things.

I discharged Mum the day after they dropped her and broke her wrist (this was someone who was in due to a collapsed vertebra caused by osteoporosis!) becuase I thought she would be cared for better elsewhere. Fortunately Aunt went to a nursing home before anything dreadful happened to her.

The problem is partly due to hospital design. Thirty years ago three nurses could run a ward of 28 people because they could see every patient from the nursing station. Nowadays those 28 patients are in 20 different rooms so the nurses have no idea what is going on

The problem is also partly due to lack of staff. A ward of 28 patients should have 3 nurses on at night. I know that our local hospital often has only one nurse on at night, and that sometimes that is an agency nurse who is not supposed to work alone and unsupervised.

Thirdly the problem is due to the fact that nurses nowadays aspire to be quasi doctors. This leaves no-one to fill the traditional nursing role of actually caring for the patients.

The answers seem to me to be fairly simple. Better hospital design; more staff at ground level (take out two or three layers of unneccessaery management to pay for it); and teach nurses to nurse, leave the doctoring to doctors.
I agree with all said, this is the proper place for such information.

I feel heart sorry for the families involved. Image

Things need to change!

After a recent, pretty awful experience ourselves, we know how dreadful it can be when:
  • The Caree is not listened too
    The Carer is not listened too
    Things are getting worse and worse and nobody seems to know what they're doing.
I honestly feel, you know the system is short changing you, when the care you provide at home is far superior, yet no-one cares what you think & know from experience works. Image

In the end we were told by a staff nurse: 'we can't cope with this!' so why didn't they listen about how we safely manage it at home then?? Image Image

I agree about advocates and specialists being involved as the Epilepsy Specialist nurse for our area was a Godsend, at last they began to listen to us all-be-it through her but at least things did improve ...a bit anyway.

We do not look forward to any further admissions to our local general as you can imagine. Image
We asked Epilepsy Scotland to contact the hospital concerned re: their policy.

To be honest about things, at present, the system for people with disabilities being admitted to General Hospitals totally sucks...

The quicker it changes the better for all.

Now? some staff should hang their head in shame. Image