Eun, I take it the MDC has an executive in charge (no doubt on a juicy salary), why not go straight to the top about the lack of response from the family care officer?
If Rob and other young guys are living longer, they need respite and so do those who look after them. How the heck can they say there is no problem? Any organisation that purports to support and provide a service for a particular client group has a duty to "move the goalposts" when the need is there, which it obviously is in the case of quite a few of these young guys.
To discount a need because the clients have lived longer than expected is appalling and totally disgusts me.