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Coping with the Hurt a Dementia Sufferer can Cause? - Carers UK Forum

Coping with the Hurt a Dementia Sufferer can Cause?

Share information, support and advice on all aspects of caring.
I'm sure many people have been through this on the board:

Today Mum's carers were in and my phone went of, I told Mum the Chiropodist was coming and her entire demeanour changed.

Mum is normally good as gold with having her nails cut, but she started screaming that she hated me, I hate you, I hate you. The one carer said she could tell that I was visibly upset.

After the carers had left I just went to my room and lied on my bed for an hour, leaving Mum to watch TV. I think Mum knew she had hurt me as when I came back she held out her hands and started telling me how much she loved me and not to leave her.

I do worry about the future, several of Mum's carers have commented on her being "Shouty" but never in her life has Mum been rude to me.
Sorry to hear that. How was your mum when the chiropodist came?
Do NOT stay in the room if this ever happens again - unless you have your phone on you and can record it.
This may mark another step down for mum, and her GP needs to know of this change. If you just do a short recording it will help the GP to understand in a few seconds.
Sorry to hear this Stephen
Sounds like a step down IMHO. Time to brace yourself for the mood swings, walk away from the harsh outbursts, try not to engage, as it makes things worse. and treasure the lovely times that you will have. Mum will no doubt forget how she has been, you won't, but will know its not her, but dementia. Not easy.
You really have to see it as the illness and NOT your Mum. you know if Mum were well she would not behave like this. She does not hate you. You have to remember how she was. My Mum rarely behaves like this, but she sometimes does. I'm braced for the fact that it will probably get worse, but at the moment it is manageable and I know she wouldn't be like this if she weren't unwell.
Agree with Sally 100%. I had to deal with dad telling me he wished I was dead one day- and believe me this was not Dad speaking which fortunately I recognised at the time although it was still hard to take and keep going. No one said dementia was easy- Keep giving yourself a reality check that this is not what your mum would mean if she were herself. It is easiest to lash out at those nearest and dearest for dementia sufferers.
Thank you so much for your kind words, I know I can be blunt at times, but this is when I really appreciate support.

I'm actually crying as I write this after reading about step downs..

But just for a laugh I'll tell you the chiropodist story, I went first to show Mum not to be scared. Would you believe the chiropodist cut my big toe. It hurt, but as Mum was watching I didn't even murmur. She then proceeded to bandage up my big toe with Mum watching. Not the start I hoped for.

But in fairness Mum only screamed at a level of 8 out of 10 to the point I closed the windows to stop the neighbours calling the police.....
I agree with the advice and comments. That said, it is very hard to 'step back'and not take it personally. I had similar experiences with my late father and it was very hurtful as we never had the best of relationships.

All I can say is try to get out as and when you can and get support from the Carers. Also agree go and see GP if it escalates as maybe he/she should know and maybe the medication should be reviewed.
At the moment Mums carers do very little as I live with her and do food, medication etc.

Its just full body wash in the morning and into day chair, then standing aid onto commode for lunch and tea, then standing aid into bed at night..

It does kind of rankle when we get the monthly bill for £2,800 knowing that Mum has only received half, probably less, than she is being charged for.

Mum is currently on no medication for dementia, other than anti-coagulants. Are other medications available that could help?
Stephen
The only medication that may help, as far as I know, is an anti psychotic, and that is given only if the aggression is out of control, causing danger etc. Or sometimes an antidepressant. Sadly, at the moment there is no cure for dementia, it declines, whether be a big step down, or slow little steps. Its not what any of us want to hear, and coming to terms is very difficult. Others may have a different opinion.
I remember, very well when hubby was in the nursing home, one of the staff, who had worked there for many years, telling me she wished there was some sort of help for relatives to get, to explain about dementia. Some relatives just could not accept the decline, blaming anything or anybody.
Maybe you could contact the Alzheimer's society. The advice on all dementia, not just Alzheimer's.