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The new Care Act/CHC/Carers Advocacy - Carers UK Forum

The new Care Act/CHC/Carers Advocacy

Share information, support and advice on all aspects of caring.
I thought the new Care Act should include CHC, but it's all about social care/local authority side of care. What about when care is provided by the local authority that is above their legal limit?

I've heard there is new Advocacy support taking over in my area. On their website it claims; 'support tailored to your needs'.

I had a web chat with them yesterday,

a) it's not in my area until January;
b) it is Advocacy under the Carers Care Act.

Which would mean it would be very limited. As has been the case with the previous Advocacy provider, that caused more confusion. What's the point of Advocacy funded when it's restricted? Surely if my Mum's getting care that shouldn't be by the local authority coz it's above their legal limit which has contributed to her health worsening; as she hasn't been adequately cared for which she has had to pay for; that would qualify an Advocacy supporting us?
Care Act , 2014 ... Independent advocacy ... full sp for your starter for ten :

https://www.scie.org.uk/care-act-2014/a ... re-act.asp

Advocacy and the duty to involve.

Local authorities must involve people in decisions made about them and their care and support. No matter how complex a person’s needs, local authorities are required to help people express their wishes and feelings, support them in weighing up their options, and assist them in making their own decisions.


As for " Legal limits " ... a case of a shortfall in the funding to match one's caree's needs ?

( In theory , there is NO legal limit ... in practice , a different ball game. LA Ombudsman site has numerous cases available to view : https://www.lgo.org.uk/ )

If so , low millions are suffering from the same shortfall ... main GREEN PAPER , SOCIAL CARE and LA MELTDOWN threads have numerous reports and articles on this very subject.

( NHS CHC ? Wiki for the historical background : https://en.wikipedia.org/wiki/Continuing_healthcare )
The fly in the ointment is that if you have a long running saga, like me, then the advocacy service might decide you'd had "enough". My advocate is really great, I looked him up and he's a retired banker.
My son has an advocate who doesn't work Fridays. My son is only at his flat during the day on Friday. The advocate is useless.
By legal limit, I mean when there is health needs Local Authorities shouldn't be involved, as it's above what they can cater for. My Mother's health has worsened as a result, as she has Dementia; has lost a lot of weight coz she cannot eat - the Care Manager's attitude is they cannot force my Mum to eat when she refuses.
In which case , CHC / NHS Continuing Healthcare ... the only " Service " that does not have a limit ... in practice.

( Which also explains why it is rationed : https://www.carersuk.org/forum/support- ... 0rationing )

Any other support service is , in practice , governed by the amount of monies available to it.

Therein lies the crux of the problem ... nationwide.
Butterfly, will mum eat for you, or has she forgotten how to eat?
bowlingbun wrote:
Sat Nov 23, 2019 12:11 pm
Butterfly, will mum eat for you, or has she forgotten how to eat?
Depends. As a lot of the time I have to coax her to eat just small amounts and end up feeding her.

The Carers just leave food in front of her. Even with having a conversation with the Care Manager, they just leave her to it; which ends up in the bin.
Could you request that she has the swallowing test? The staff would have to help her to eat if requested by the salt team.
In the meantime some complan or similar. Some yoghurt? The staff really should be considering all of this!
Pet66 wrote:
Sat Nov 23, 2019 9:25 pm
Could you request that she has the swallowing test? The staff would have to help her to eat if requested by the salt team.
In the meantime some complan or similar. Some yoghurt? The staff really should be considering all of this!
My Mum's appetite has reduced a lot due to Dementia. She has thickener in her drinks as per the SALT Team, as the Strokes have affected her swallow. She also has nutritional drinks suppliments to help maintain her weight. The Nutritionist Nurse comes over to check her BMI every few months. Every day I go over to sort out Lunch, I encourage my Mum to eat a yoghurt.
I see. I remember it all too well with my husband. Took me 18months to get through to staff the hubby could not cut up meat with a fork and the use of one hand only! Or that he could not hold a yoghurt pot, so please put yoghurt in a dish. Eventually he was on the thickening in drinks and soft food options. Went in one day to find his cup of tea was cold and like jelly.
Im so sorry you are going through this and fighting for what seems common sense.