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Can I "self" refer to Physio and OT - Carers UK Forum

Can I "self" refer to Physio and OT

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We had a very unhelpful DR's apt this morning. The red/purple patch with a bright pink ring around it on the rear of her calf is down to edema and Nan needs to raise both legs above her hips for most of the day. The problem I have is she has TB lesions on her left hip and it is fixed so doesn't move. This causes problems in rising from chairs and raising that leg, the femur hasn't grown fully either so is shorter than her other leg. Her other leg is now well worn due to depending on it over the TB one. Raising both legs at the same time is something she cannot do and finds it difficult to lie on her back. If we used pillows to raise them over night she wouldn't be able to get out which means someone would have to be with her and awake to get up her up to go to the toilet but also she can't phsyically do it anyway.

The Dr has said that as they are unable to do anything medically due to poor kdiney function which would be made worse with medication for the edema. I'm totally at a loss and pretty annoyed that having already spent a considerable sum of money on every foot stool and raiser I can find before resorting to a beanbag that the Dr has dismissed our efforts and have said it's not good enough and it's up to us to get her legs above her hips for the majority of the day.

So to the point of this, how can I get her reffered to an OT and Physio who will work together to find a solution to this? The OT we have is less than helpful as she said then don't put them up. I am starting actually no I've totally lost patients with this, I'm in no way qualified to dream up contoronist moves or circus equipment to make this happen and feel the professionals should have a bigger input with it.

Sorry for moaning and most of all sorry for this never ending broken record.
One of the worst thing about being a carer is dealing with people who are paid and qualified but don't look at the situation properly and don't hear what is said.
I might have a solution to the leg problem. After I had a knee replacement one of my knees was very swollen after I accidentally leant on the leg drain and it came out! Once home, I rang my pharmacy, who know me well, and asked if a Circulation Booster would help? The pharmacist told me he used his every night, and recommended one. It was amazing, my swollen knee and feet went down really quickly. It was expensive, around £180. The patient sits normally with feet on the foot pads and the muscles are electrically stimulated, and the amount is controlled by the user.
A TENS machine works in a similar way I believe. One of these would not require sitting normally, but should still be able to stimulate muscles.
I understand they are no good for patients with heart pacemakers.
Maybe an initial internet search to see what is out there, then consult a phsio or OT?
Ah yes the one thing I hadn't put in my original post is that she does have a pacemaker. I think that changes things because as you say some machines can't be used with a pacemaker. To be honest I'd willingly find the money somehow if it would help it's just getting everything to fit together. I'm going to have a search now something may turn up.

Thank you I feel a bit better now. I was rather deflated and annoyed earlier but it's easing now.
Sall the Bibliophile wrote:
Thu Oct 31, 2019 11:32 am
We had a very unhelpful DR's apt this morning. The red/purple patch with a bright pink ring around it on the rear of her calf is down to edema and Nan needs to raise both legs above her hips for most of the day. The problem I have is she has TB lesions on her left hip and it is fixed so doesn't move. This causes problems in rising from chairs and raising that leg, the femur hasn't grown fully either so is shorter than her other leg. Her other leg is now well worn due to depending on it over the TB one. Raising both legs at the same time is something she cannot do and finds it difficult to lie on her back. If we used pillows to raise them over night she wouldn't be able to get out which means someone would have to be with her and awake to get up her up to go to the toilet but also she can't phsyically do it anyway.

The Dr has said that as they are unable to do anything medically due to poor kdiney function which would be made worse with medication for the edema. I'm totally at a loss and pretty annoyed that having already spent a considerable sum of money on every foot stool and raiser I can find before resorting to a beanbag that the Dr has dismissed our efforts and have said it's not good enough and it's up to us to get her legs above her hips for the majority of the day.

So to the point of this, how can I get her reffered to an OT and Physio who will work together to find a solution to this? The OT we have is less than helpful as she said then don't put them up. I am starting actually no I've totally lost patients with this, I'm in no way qualified to dream up contoronist moves or circus equipment to make this happen and feel the professionals should have a bigger input with it.

Sorry for moaning and most of all sorry for this never ending broken record.
If you need a new OT, use this website https://rcotss-ip.org.uk/find
They aren't exactly local 23 miles being the closest so I highly doubt a home visit would occur and how do I get a referral or are these private? I'm starting to really think I do need to rob a bank or something at least in prison I wouldn't have bills to worry about.
Sall the Bibliophile wrote:
Thu Oct 31, 2019 3:48 pm
They aren't exactly local 23 miles being the closest so I highly doubt a home visit would occur and how do I get a referral or are these private? I'm starting to really think I do need to rob a bank or something at least in prison I wouldn't have bills to worry about.
What are your other options?
I'll be honest I haven't a clue, I kind of hoped there would be a way of changing or seeing a specialist rather like a referal from a gp to a hospital specialist...okay so typing that I now realise exactly how stupid I am because it's obvious that wouldn't happen. :blush: :cry:
Sall the Bibliophile wrote:
Thu Oct 31, 2019 5:02 pm
I'll be honest I haven't a clue, I kind of hoped there would be a way of changing or seeing a specialist rather like a referal from a gp to a hospital specialist...okay so typing that I now realise exactly how stupid I am because it's obvious that wouldn't happen. :blush: :cry:
You need to be a pest. That is the only way. Sadly GPs don't typically refer you. When I had a bad experience with a therapist, I wrote a polite but strongly worded email asking the head of the therapy department to basically recommend someone else.

Perhaps try that approach and see what happens as a result? Or you can call. What about patient liaison services? Can you contact them? They might be able to help. Request a second opinion.
In Hampshire, I believe you can have a Social Services OT. Have a look at your council website. Distance should be no object, they are not just there to help people in towns! (I'm in the New Forest).
We have a social services OT and because I am deaf and they will not accept or use next generation text I cannot phone and email does not appear to be working as when I contacted her about toilet rails she had no clue what I was talking about despite giving her all the details again. I was thinking perhaps instead of someone who pics items from a catalogue someone who would make the effort to drive 4.3 miles from town and see the difficulties with movement may be of more help. I know from experience they won't want to drive that far.

I am starting to think I should step down I just don't have the finances to do what is needed and not being able to make phone calls is just making everything worse...nans nearest other family is in mid wales who we rarely see or hear from and I don't know their financial circumstances but I do know I don't have the money needed to get the services she needs and I hate seeing her struggle because I am so useless.