Thank you all for your helpful responses. In the end the organiser of the meeting wouldn’t let us record it but our solicitor agreed to participate and do a record. Hopefully that will be enough.
I am still trying to get my father discharged home to live with me so he can die surrounded by family and friends. He has been in hospital since early December. We were told in january that he only had a few months to live. Then he caught the coronavirus whilst an inpatient. He has now finally been declared negative and medically fit for discharge. The hospital and CCG want him to go to a care home but I wouldn’t be allowed to visit him even though he’s dying. That would break my heart and he would be so hurt (not understanding what is going on) so we are fighting to get him to be allowed to live with me. It’s exhausting - I just don’t know why they are so difficult- I’ve found it amazing how rude and agressive some of the staff can be. If you don’t agree with everything they say , no matter how polite you are they can turn really nasty and as a carer and on my own I feel so vulnerable. It’s so different to the impression you get from the media., I assume ultimately it’s all about money but sometimes the way they speak to you and comments they make Is just unbelievable,
I am very grateful to everyone on the forum who has given their support and advice. I am also very sorry for all the difficult experiences that other carers seem to be enduring. It’s just so unfair and just not right that those trying their hardest to do the right thing are not more supported. I’m sorry for those having difficult times and just wish something could be done. Do take care of yourselves.