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qestion re; epilepsy - Page 5 - Carers UK Forum

qestion re; epilepsy

For issues related to specific conditions and disabilities.
439 posts
Hi all Image
So good to have you to sound off at, thanks x
2 weeks to go until Neuro, at this rate my questions/symptoms list will be as big as my shopping list! Image
Hubs 'lost' the whole of Saturday after having 7 episodes at tea time, took him until Sunday afternoon to start getting his memory back. He gets understandably frustrated when this happens, but, he has only had 1 episode since then (+ 2 clear days) so the meds must be having some effect.

At least there's never a dull moment here Image
Thanks again all
Hi Sturdygirl,
hows your husband been the last few days? good luck at your neuro appointment next week, do you have to travel far?.Some medications can increase/change seizure activity as they don't suit,could be the reason for his possible complex partial attack? has he had an EEG?
Hi Paul,
Hubs managed 5 clear days Image Then made them all up in one session Image But that is far better than having them every day as he was, still up to the unusual behaviour though.
The hospital isn't too far away from us and SIL has offered to take us.
Hubs has had an EEG, MRI and a sleep deprived EEG, only the sleep deprived one showed minor changes in the temporal lobe, but he had an absence an hour before it!
How long does it take your Lisa to 'get over' her absences? - With Hubs it varies greatly depending on how many he has in one go, sometimes a couple of days.
9 days and counting until Neuro !

Lisa gets over absences fairly quickly but when they cluster (a series of seizures following on from another) myself or other family members normally have to admininster diazepam or midazolam depending on the situation, to bring the seizure activity to an end.
It's nice that he went 5 days, you just start to relax and bang it happens again. Image
Is it just absences he has? or can he have some intense seizures?
EEG's can't show the much unless he actually has a seizure(s), and MRI would only show any abnormality i.e scare tissue/tumour or a growth which could give the neuro's a clue to the problem area.
Are your husbands seizures over in seconds or can they last a minute or 2?
My Lisa recently had the invasive recordings done (for 2nd time) at Liverpool, now they believe her epilepsy is in her frontal lobe.In this procedure they place surface grids and depth electrodes over an area of the area of brain in question.
Anyway let us know how you go on next week, i'd be interested to hear.
Sorry I missed this I take 50mg morn and night and 25mg of lamotrigine at night
Hubs just has absences, some unusual behaviour but nothing intense, he just stops and goes somewhere else.
The question on how long they last is difficult to answer.... one of us is always close so we can 'wake' him, I did take video I my phone for the neurologist which lasted over 2 minutes (he just didn't want to come out of it) and he often has clusters where we think he's back, then seconds later he's off again, this can go on for a good half an hour, after which he is really wobbly like he's drunk, gets blurred vision, memory loss, shakes etc.
One of the worse things for hubs is the intense headache, it was there all day yesterday, an after effect of the previous days absences.
If the tests Lisa had show a specific part of the brain is affected, does that mean a different meds regime? I mean are there specific meds to treat a specific area? Sorry, even though Hubs has had these for 2 years, with no specific diagnosis I still know so very little.

Tracie, interesting to see you take a split dose, Hubs takes one 200mg lamotrigine tablet, once a day.
Sturdygirl, when I did epilepsy training for school, I was told that you can't "wake" someone who is having a seizure, you just have to wait for it to run it's course (or administer rescue meds.) Are you sure waking him really works? And if so, I think you need to ask the neuro about it.

Lisa's has tried most AED's (anti epilepsy drugs) and usually these are prescribed by the seizures type.For example seizures are put in groups i.e partials, simple partials, absences Tonic Clonics,complex partial and so on, some drugs are aimed at a particular type but it's not always the case.In our experiance it's more "see how you go on" over 3-4 months.
As Melly1 has just said are you sure your able to "Wake" your husband? normally seizures come to end naturally, an EEG would show a "spike" of electrical activity as his seizure takes hold and then subside as it finishes.It would be impossible to wake him as such, his heart rate and blood pressure would increase during this time and as a result his breathing would change maybe. As he comes too he will start hearing people again and it would indeed feel as though your waking him.
Melly& Paul you raise a very good point, the first thing I did was ask if trying to 'wake' Hubs was the right thing to do, and if there was anything I needed to know, the Neurologist didn't give me any decent advice, he just said to carry on doing what I do.

I did a basic first aid course (years ago) and remembered that you shouldn't try to wake someone, but thought that was from a full seizure.

When we try to wake Hubs, we say his name over and over until he jumps and starts to come back, if we didn't I really don't know how long it would last, but when it happens when he is standing up, I have no choice but to try and get him back asap, 17 stone is a lot to try and hold up !

You've got my brain ticking, that question will definitely be on my list, what if waking him is wrong? Or as you suggest, we're not actually waking him, it's the seizure ending. I think I will push this question this time and get a proper answer.
Once again, I thank you for your time and advice, this is certainly a learning curve
Sturdygirl, a few years ago, carers were advised to rub the cheeks of the patient to bring them out of certain types of seizures - but this advice has now changed - I'm sure it's not because it is dangerous, but because there is no point.

I don't know how epilepsy services operate in your area, but some areas have epilepsy nurses - and they are usually great. They take more time and interest in the patient, are keen to get to the bottom of things and good at answering questions, giving advice and where necessary liaising with the neuro. Might be worth sussing out the situation in your area ...

439 posts